The Solve ME/CFS Initiative hosted a webinar with Dr. Lily Chu June 18 called, “Post-Exertional Malaise: History, Characteristics, Evidence.” Dr. Chu has followed up with her responses to questions that were unable to be answered during the webinar due to time limitations. Read More…
SMCI Announces New VP for Research and Scientific Programs
The Solve ME/CFS Initiative is pleased to announce the appointment of Zaher Nahle, PhD, MPA, as its Vice President for Research and Scientific Programs, effective June 29. Read More…
Solve ME/CFS Initiative Hosts IOM Briefing in D.C.
On March 25, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., on the IOM report on ME/CFS [SEID]. The briefing gathered congressional representatives, reporters, government officials and researchers while more than 300 viewed the event through a live webcast. The landmark report was reviewed and Carol Head made a strong and compelling call for more federal research funding. Read More…
IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name
IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name. The report underscores the profound impact that ME/CFS has on the millions who suffer from it worldwide (est. 17 million) and the importance of getting people diagnosed; committee calls for more research funding. READ MORE…
Research Digest – January 2015: High Interest in ME/CFS Shown in Journal Rankings
Deciphering PEM is a critically important area of research for ME/CFS. Despite the lack of gravity and specificity a term like “post exertional malaise” signifies, research into what it is and how to measure it is some of the most important research – and most popular. The Journal of Translational Medicine ranked two articles dealing with ME/CFS among its most highly accessed for 2014. LEARN MORE…
Guest Blog: Armin Alaedini, PhD – The Search for Food Sensitivity Biomarkers in ME/CFS
Often those with ME/CFS experience gastrointestinal symptoms. Biomarkers of these symptoms could help to identify subtypes in ME/CFS. Dr. Armin Aledini is using samples from the SolveCFS BioBank™ to look for auto-antibodies against a range of dietary proteins. In this guest blog post he discusses Celiac disease, which is a commonly misdiagnosed condition with symptoms similar to ME/CFS. READ MORE…
The P2P Report – CFSAC Drafts Substantive, Expert Response
On 1/13/2015, the CFSAC met and finalized its response and feedback to the P2P draft report. SMCI participated in the process, with Carol Head, president and CEO, serving on the CFSAC working group. SMCI will endorse the CFSAC response in it’s feedback to the P2P panel concerning the report. LEARN MORE…
P2P Draft Report Set to be Published, 30 days for Feedback
On December 9 & 10, the Pathway to Prevention Workshop for “Advancing the Research on ME/CFS” was held. The draft report is scheduled to be posted on December 18, 2014 with a 30 day comment period. The Solve ME/CFS Initiative will work with members of its Research Advisory Council and other advisers to issue a response to the report. Access the workshop recordings a READ MORE
Research Digest – December 2014: 10 Important Advances in ME/CFS
While progress is still far too slow, there have been many recent interesting and important discoveries in ME/CFS. In this year-end blog post, Dr. Vernon and Dr. Komaroff summarize what they regard as the most important recent advances in our field. READ MORE…
Being “Patient-Centric”
Patients are central to a solution for ME/CFS. We have designed our SolveCFS BioBank™ to collect and manage data so that the individual is the central organizing principle. LEARN MORE…