Solve M.E. Position Statements and Letters

March 13, 2026 — Solve M.E. Among 122 Organizations Calling on Congress to Designate $1.7 Billion for ARPA-H Through FY2029

January 6, 2026 — Solve M.E. Supports Designating March 15 as International Long Covid Awareness Day and Illuminating Los Angeles City Hall in Teal

April  23, 2025 — Solve M.E. Joins 76 Organizations Urging Labor, Health and Human Services, and Education Appropriations Bill for Fiscal Year 2026 Includes $1.7 billion for the Advanced Research Projects Agency for Health (ARPA-H)

March 11, 2025 — Solve M.E. Signs Letter Supporting SSI Savings Penalty Elimination Act

September 6 — Solve M.E. Signs Research!America’s Letter to Senate Appropriations Leadership Thanking Them for Championing the Proposed NIH Increase of Nearly $2 Billion
May 24 — Solve M.E. Signs Letter Ensuring Continued, Timely Access to Covid-19 Vaccines 
April 23 — Solve M.E. Submits Long Covid Moonshot Feedback to Senator Sanders and the Senate HELP Committee 
March 8 — Solve M.E. Submits Feedback to the NANDS Council Working Group on ME/CFS Research Roadmap Priorities 
January 16 — Solve M.E. Signs Consensus Statement for ME/CFS Research 

December 18 — Solve joins broad coalition urging President Biden to address crisis of infection-associated chronic conditions in FY25 budget

October 27 — Solve and 130 organizations call on Congress to fully fund the Congressionally Directed Medical Research Program 

October 3 — Solve Shares Guidelines on Interactions with Biopharmaceutical Companies 

September 12 — Solve and 370 organizations endorse the SSI Savings Penalty Elimination Act

July 19 — Solve joins 50 organizations and dozens of individuals in urging Congress to pass S.1489 – National Task Force on the COVID-19 Pandemic Act

May 15 — Solve joins 760 organizations in warning Congress against cuts to non-defense programs  (often referred to as non-defense discretionary appropriations or simply “NDD”)

April 24 — Solve and partners urge House to support defense health research programs via Congressionally Directed Medical Research Programs (CDMRP) at Department of Defense (DoD)

April 24 — Solve and partners urge Senate to support defense health research programs via Congressionally Directed Medical Research Programs (CDMRP) at Department of Defense (DoD)

March 29 — Solve M.E. urges Department of Defense to include language keeping ME/CFS in fiscal year 2023 Defense Appropriations bill as a Congressionally directed topic area

March 24 — Solve M.E. urges that Labor, Health and Human Services, and Education Appropriations bill for fiscal year 2024 include $20 million in post-viral illness resources

January 31 — Solve M.E. joins 50 groups in responding to the Request for Information on Essential Health Benefits (EHB)

January 30 — Solve M.E. joins 71 groups in letter on the Notice of Benefits and Payment Parameters for 2024 Proposed Rule

December 29 — Solve M.E. Joins Long COVID Alliance in Sharing Letter with NIH Director Seeking Information About Long Covid & Associated Conditions Research & Resources

December 9 — Solve M.E. Joins 35 Other Organizations in Urging Congress to Complete FY 2023 Omnibus Funding Bill

December 6 — Solve M.E. & 170 Organizations Join Research!America Letter Urging Passage of FY23 Omnibus Package

November 21 – Solve M.E. Joins Over 100 Organizations in Urging Congress to Enact 2023 Defense Appropriations Act

September 30 – Solve M.E. Joins World ME Alliance in Submitting Feedback for EU Study 

September 27 – Solve M.E. Submits Comments to the Office of Research on Women’s Health (ORWH)’s Request for Information (RFI) on NIH-Wide Strategic Plan for Research on the Health of Women

September 19 – Solve M.E. Joins 115 Organizations in Signing Research!America FY23 Appropriations Letter

September 8 – Solve M.E. Joins 80 Organizations in Sending Letter to Congressional leadership in support of H.R. 8151 and S. 3479, the Building a Sustainable Workforce for Healthy Communities Act

July 21 – Solve M.E. Authors Letter to Select Subcommittee on the Coronavirus Crisis Following Long Covid Hearing

March 16 – Solve M.E. Joins Over 100 Organizations In Signing Onto Research!America’s Letter Urging for Robust 302(b) Allocation for the Labor-HHS-Education Subcommittee

March 1 – Solve M.E. Authors Letter Urging Senate and House Appropriations to Pass FY22 Budget

February 4 – Solve M.E. Signs Coalition Letter Supporting COVID-19 and Pandemic Response COE in Murray/Burr PREVENT Pandemics Act 

January 25 – Solve M.E. Authors Letter of Support for Congressional Request to Report Findings on Prevalence of Long COVID

December 14 – Solve M.E. Joins Over 60 Organizations in Sign-On Letter to Protect Orphan Drug Tax Credit for Individuals Living with Autoimmune Disease

November 15, 2021 – Petition to Fix the Catastrophic Lack of ME/CFS Case Tracking in the U.S. Signed by 3,193

November 3, 2021 – Solve M.E. Letter to the Senate HELP Committee for the Road Ahead for the COVID-19 Response Hearing

October 1, 2021 – Solve M.E. Signs Research!America Letter Urging Congress to Complete the Fiscal Year 2022 Appropriations Process Before the Current CR Expires on December 3, 2021

August 16: Solve M.E. Issues Public Comments To CDC for The Systematic Review Report for Diagnosis and Treatment of ME/CFS

July 8, 2021 – Solve M.E. Joins 37 Organizations of the Defense Health Research Consortium (DHRC) to Express Support for Peer Review Grant Process at the Congressionally Directed Medical Research Program (CDMRP)

May 21, 2021 – Solve M.E. Joins Over 120 Organizations In Requesting Continued Support for Defense Health Research Programs Through the Congressionally Directed Medical Research Programs (CDMRP) at the Department of Defense (DoD). *Companion Letter Sent to House

May 6, 2021 – Solve M.E. and 50 Organizations Join AAPM&R’s Call for a Federal Commission to Develop a Comprehensive National Plan to Defeat the Long COVID Crisis

April 28 – Solve M.E. Joins Over 100 Organizations In Requesting Funding for Consumer Assistance Program (CAPs)

April 16, 2021 – Solve M.E. Signs Cigna Letter to Patients & Providers Regarding the Use of Cosentyx

April 2, 2021 – Solve M.E. Signs Letter in Response to MACPAC’s Proposed Differential Rebate Models for Accelerated Approval Drugs

April 1, 2021 – Solve M.E. Signs Letter in Support of the Establishment of a new Health Advanced Research Projects Agency (HARPA)

March 24, 2021 – Solve M.E President Oved Amitay Responds to Wall Street Journal Op-Ed Citing False Information About ME/CFS and Long COVID

March 24, 2021 – Solve M.E. Joins 200 Organizations Requesting President Biden and Congressional Leadership Champion the Research Investment to Spark the Economy (RISE) Act

February 25, 2021 – Solve M.E. and 49 Other Members of the Long COVID Alliance Make Recommendations to the National Institutes of Health (NIH)

February 2, 2021 – Solve M.E. and 10 Other ME/CFS Organizations Sign Letter to Congress Recommending Additional Priorities for Upcoming Federal 2021 COVID-19 Relief Package

December 14 – Solve M.E. Joins Over 60 Organizations in Sign-On Letter to Protect Orphan Drug Tax Credit for Individuals Living with Autoimmune Disease

November 15, 2021 – Petition to Fix the Catastrophic Lack of ME/CFS Case Tracking in the U.S. Signed by 3,193

November 3, 2021 – Solve M.E. Letter to the Senate HELP Committee for the Road Ahead for the COVID-19 Response Hearing

October 1, 2021 – Solve M.E. Signs Research!America Letter Urging Congress to Complete the Fiscal Year 2022 Appropriations Process Before the Current CR Expires on December 3, 2021

July 8, 2021 – Solve M.E. Joins 37 Organizations of the Defense Health Research Consortium (DHRC) to Express Support for Peer Review Grant Process at the Congressionally Directed Medical Research Program (CDMRP)

May 21, 2021 – Solve M.E. Joins Over 120 Organizations In Requesting Continued Support for Defense Health Research Programs Through the Congressionally Directed Medical Research Programs (CDMRP) at the Department of Defense (DoD). *Companion Letter Sent to House

May 6, 2021 – Solve M.E. and 50 Organizations Join AAPM&R’s Call for a Federal Commission to Develop a Comprehensive National Plan to Defeat the Long COVID Crisis

April 28 – Solve M.E. Joins Over 100 Organizations In Requesting Funding for Consumer Assistance Program (CAPs)

April 16, 2021 – Solve M.E. Signs Cigna Letter to Patients & Providers Regarding the Use of Cosentyx

April 2, 2021 – Solve M.E. Signs Letter in Response to MACPAC’s Proposed Differential Rebate Models for Accelerated Approval Drugs
April 1, 2021 – Solve M.E. Signs Letter in Support of the Establishment of a new Health Advanced Research Projects Agency (HARPA)

March 24, 2021 – Solve M.E President Oved Amitay Responds to Wall Street Journal Op-Ed Citing False Information About ME/CFS and Long COVID

March 24, 2021 – Solve M.E. Joins 200 Organizations Requesting President Biden and Congressional Leadership Champion the Research Investment to Spark the Economy (RISE) Act

February 25, 2021 – Solve M.E. and 49 Other Members of the Long COVID Alliance Make Recommendations to the National Institutes of Health (NIH)

February 2, 2021 – Solve M.E. and 10 Other ME/CFS Organizations Sign Letter to Congress Recommending Additional Priorities for Upcoming Federal 2021 COVID-19 Relief Package

December 18, 2020 – Solve M.E. Calls for Retraction, Correction of Misleading Information about ME/CFS in Psychology Today

December 10, 2020 – Solve M.E. Joins 57 Other Organizations In a Call to Action for Health Equity

December 4, 2020 – Sign-On Letter to Leader McConnell and Speaker Pelosi from Research!America

December 4, 2020 – Solve M.E. Signs Letter with 20 Other Chronic Disease Stakeholders in Push for Federally Funded Research into Long COVID

September 8, 2020 – Public Comments – Solve M.E. calls for ME/CFS Federal Advisory Committee Reinstatement at Office of Women’s Health

September 3, 2020 – Public Comments – Solve M.E. calls for Prioritization of People with ME/CFS in COVID-19 Vaccine Distribution

July 13, 2020 – Solve M.E. Signs Letter  to Congress Outlining Urgent Nonprofit Policy Priorities in Reforms to CARES Act

July 10, 2020 – Solve M.E. Signs Letter to Congress Supporting Policies to Protect and Accommodate the Immunocompromised During the Pandemic

June 11, 2020 – H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act

May 6, 2020 – Support Research Protections for Non-Profits in COVID-19 response

April 9, 2020 – Solve M.E. Signs Letter Urging Congress to Expand Paid Leave for People with Chronic Health Conditions

February 18, 2020 – H.R. 913, The CLINICAL TREATMENT Act – Endorsement

February 6, 2020 – Friends of PCORI – Health Extenders Package

January 31, 2020 – Public Comments – Docket No. SSA-2018-0026: Rules Regarding the Frequency and Notice of Continuing Disability Reviews

November 22, 2019 – Trial By Error: Open Letter to Dr. Godlee about BMJ’s Ethically Bankrupt Actions

September 10, 2019 – Comments and Thanks: “A Town for People with Chronic-Fatigue Syndrome.”

September 5, 2019 – ME/CFS Disease Criteria and Terminology: Research, Inclusion and Community

July 22, 2019 – Letter of support for EU petition, Funding for ME Biomedical Research

July 8, 2019 – Public Comments, July 10th Meeting of U.S. Access Board

June 8, 2019 – Request for Further Research Regarding Current Guidelines Applicability for those Disabled by ME/CFS

May 9, 2019 – Statement by Solve ME/CFS Initiative (Solve ME) on Senate Resolution and Labor-HHS-Education Markup

February 15, 2019 – Letter of Support HR 913, Clinical Treatment Act

February 8, 2019 – Retraction and Apology request, University Times

January 24, 2019 – Letter in Support of Women’s Health Research Day

November 7, 2018 – Community Letter to HHS on Termination of CFSAC

November 2, 2018 – 10 Organizations Request Legislative Solutions for ME/CFS

October 31, 2018 – Statement by Solve ME/CFS Initiative President and CEO Carol Head on the naming and definition challenges of Myalgic Encephalomyelitis (ME) 

October 16, 2018 – Thank you letter for $2b increase to NIH funding FY19

September 14, 2018 – Fiscal Year 2019 Appropriations Funding Package Statement

November 2, 2018 – 10 Organizations Request Legislative Solutions for ME/CFS

September 14, 2018 – Fiscal Year 2019 Appropriations Funding Package Statement