Solve M.E. Position Statements and Letters

December 14 – Solve M.E. Joins Over 60 Organizations in Sign-On Letter to Protect Orphan Drug Tax Credit for Individuals Living with Autoimmune Disease

November 15, 2021 – Petition to Fix the Catastrophic Lack of ME/CFS Case Tracking in the U.S. Signed by 3,193

November 3, 2021 – Solve M.E. Letter to the Senate HELP Committee for the Road Ahead for the COVID-19 Response Hearing

October 1, 2021 – Solve M.E. Signs Research!America Letter Urging Congress to Complete the Fiscal Year 2022 Appropriations Process Before the Current CR Expires on December 3, 2021

July 8, 2021 – Solve M.E. Joins 37 Organizations of the Defense Health Research Consortium (DHRC) to Express Support for Peer Review Grant Process at the Congressionally Directed Medical Research Program (CDMRP)

May 21, 2021 – Solve M.E. Joins Over 120 Organizations In Requesting Continued Support for Defense Health Research Programs Through the Congressionally Directed Medical Research Programs (CDMRP) at the Department of Defense (DoD). *Companion Letter Sent to House

May 6, 2021 – Solve M.E. and 50 Organizations Join AAPM&R’s Call for a Federal Commission to Develop a Comprehensive National Plan to Defeat the Long COVID Crisis

April 28 – Solve M.E. Joins Over 100 Organizations In Requesting Funding for Consumer Assistance Program (CAPs)

April 16, 2021 – Solve M.E. Signs Cigna Letter to Patients & Providers Regarding the Use of Cosentyx

April 2, 2021 – Solve M.E. Signs Letter in Response to MACPAC’s Proposed Differential Rebate Models for Accelerated Approval Drugs
April 1, 2021 – Solve M.E. Signs Letter in Support of the Establishment of a new Health Advanced Research Projects Agency (HARPA)

March 24, 2021 – Solve M.E President Oved Amitay Responds to Wall Street Journal Op-Ed Citing False Information About ME/CFS and Long COVID

March 24, 2021 – Solve M.E. Joins 200 Organizations Requesting President Biden and Congressional Leadership Champion the Research Investment to Spark the Economy (RISE) Act

February 25, 2021 – Solve M.E. and 49 Other Members of the Long COVID Alliance Make Recommendations to the National Institutes of Health (NIH)

February 2, 2021 – Solve M.E. and 10 Other ME/CFS Organizations Sign Letter to Congress Recommending Additional Priorities for Upcoming Federal 2021 COVID-19 Relief Package

December 14 – Solve M.E. Joins Over 60 Organizations in Sign-On Letter to Protect Orphan Drug Tax Credit for Individuals Living with Autoimmune Disease

November 15, 2021 – Petition to Fix the Catastrophic Lack of ME/CFS Case Tracking in the U.S. Signed by 3,193

November 3, 2021 – Solve M.E. Letter to the Senate HELP Committee for the Road Ahead for the COVID-19 Response Hearing

October 1, 2021 – Solve M.E. Signs Research!America Letter Urging Congress to Complete the Fiscal Year 2022 Appropriations Process Before the Current CR Expires on December 3, 2021

July 8, 2021 – Solve M.E. Joins 37 Organizations of the Defense Health Research Consortium (DHRC) to Express Support for Peer Review Grant Process at the Congressionally Directed Medical Research Program (CDMRP)

May 21, 2021 – Solve M.E. Joins Over 120 Organizations In Requesting Continued Support for Defense Health Research Programs Through the Congressionally Directed Medical Research Programs (CDMRP) at the Department of Defense (DoD). *Companion Letter Sent to House

May 6, 2021 – Solve M.E. and 50 Organizations Join AAPM&R’s Call for a Federal Commission to Develop a Comprehensive National Plan to Defeat the Long COVID Crisis

April 28 – Solve M.E. Joins Over 100 Organizations In Requesting Funding for Consumer Assistance Program (CAPs)

April 16, 2021 – Solve M.E. Signs Cigna Letter to Patients & Providers Regarding the Use of Cosentyx

April 2, 2021 – Solve M.E. Signs Letter in Response to MACPAC’s Proposed Differential Rebate Models for Accelerated Approval Drugs
April 1, 2021 – Solve M.E. Signs Letter in Support of the Establishment of a new Health Advanced Research Projects Agency (HARPA)

March 24, 2021 – Solve M.E President Oved Amitay Responds to Wall Street Journal Op-Ed Citing False Information About ME/CFS and Long COVID

March 24, 2021 – Solve M.E. Joins 200 Organizations Requesting President Biden and Congressional Leadership Champion the Research Investment to Spark the Economy (RISE) Act

February 25, 2021 – Solve M.E. and 49 Other Members of the Long COVID Alliance Make Recommendations to the National Institutes of Health (NIH)

February 2, 2021 – Solve M.E. and 10 Other ME/CFS Organizations Sign Letter to Congress Recommending Additional Priorities for Upcoming Federal 2021 COVID-19 Relief Package

December 18, 2020 – Solve M.E. Calls for Retraction, Correction of Misleading Information about ME/CFS in Psychology Today

December 10, 2020 – Solve M.E. Joins 57 Other Organizations In a Call to Action for Health Equity

December 4, 2020 – Sign-On Letter to Leader McConnell and Speaker Pelosi from Research!America

December 4, 2020 – Solve M.E. Signs Letter with 20 Other Chronic Disease Stakeholders in Push for Federally Funded Research into Long COVID

September 8, 2020 – Public Comments – Solve M.E. calls for ME/CFS Federal Advisory Committee Reinstatement at Office of Women’s Health

September 3, 2020 – Public Comments – Solve M.E. calls for Prioritization of People with ME/CFS in COVID-19 Vaccine Distribution

July 13, 2020 – Solve M.E. Signs Letter  to Congress Outlining Urgent Nonprofit Policy Priorities in Reforms to CARES Act

July 10, 2020 – Solve M.E. Signs Letter to Congress Supporting Policies to Protect and Accommodate the Immunocompromised During the Pandemic

June 11, 2020 – H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act

May 6, 2020 – Support Research Protections for Non-Profits in COVID-19 response

April 9, 2020 – Solve M.E. Signs Letter Urging Congress to Expand Paid Leave for People with Chronic Health Conditions

February 18, 2020 – H.R. 913, The CLINICAL TREATMENT Act – Endorsement

February 6, 2020 – Friends of PCORI – Health Extenders Package

January 31, 2020 – Public Comments – Docket No. SSA-2018-0026: Rules Regarding the Frequency and Notice of Continuing Disability Reviews

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