Solve M.E. is the proud host and organizer of the annual ME/CFS Advocacy Week. Founded in 2017, this nationwide advocacy effort connects people with ME/CFS, Long Covid, and other chronic illnesses; scientists; clinicians and caregivers to share their unique stories with Congress. These advocacy events contain actions for every energy level and ability to join, from a social media post, to meeting with Congressional leaders face to face in Washington D.C. Our goals are to educate, empower, and deliver our message: “#StopTheLongHaul now!”
Learn more about Advocacy Week 2024 here.
Registration is now open for virtual and in-person meetings April 17th to April 22nd, 2023.
Personalized Training
In-person and webinar-based training sessions teach you everything you need to know in order to be an effective advocate. Our advocacy team also hosts personalized “office hours” for one-on-one and state-team based strategy sessions with participants. You will have all the support you need, regardless of experience, to prepare for congressional meeting success and learn skills that will help in all your future advocacy work.
The annual EmPOWER M.E. Roundtable is a panel discussion and workshop in which patient advocates, professionals, and scientists share their expertise on topics relevant to the quality of life for people with complex, chronic illnesses and their caregivers. Previous topics have included empowerment in the doctor’s office, navigating disability insurance, and participating in research. Learn more and watch recordings of previous years’ workshops here.
The keystone event is Advocacy Day: a full-day Congress-targeted mobilization during which hundreds of advocates connect with members of Congress and their staff. Your experiences are powerful and sharing them ensures that your elected officials understand the unique needs of people with ME/CFS, Long Covid and post-infection illnesses. Make new friends and join your neighbors as Advocacy Day educates over 60% of Congress in a single day about the “long haul” issues that matter to you!
Even if you can’t participate in the Advocacy Week events, you can still get involved online and on social media! Our Advocacy Week Remote Action Kit has everything you need to make the most of your advocacy experience, including tools and templates to post to social media, send customized emails, tweet your members of Congress directly, and engage with online communities. Take advantage of our energy-conscious, pre-generated actions, or use our toolkit to create your own!
Your advocacy doesn’t end after Advocacy Month. Use our advocacy action tool to stay involved year-round.
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Suite B #368
Glendale, CA 91206
SolveCFS@SolveCFS.org
704-364-0016
