Solve M.E. Advocacy Month 2022

Advocacy Month 2022 took place virtually throughout the month of May, kicking off  Monday, May 2, 2022. 

Advocacy Month is a nationwide advocacy effort to connect people with ME/CFS, Long Covid, and other chronic illnesses; scientists; clinicians and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS and other post-infection diseases widely understood, diagnosable, and treatable.  

A very special thanks to our sponsor, Rare Diseases Legislative Advocates, for their translation support and to our partners: Body Politic, #MEActionPatient-Led Research Collaborative., Long Covid Families, COVID-19 Longhauler Advocacy Project, AmeriDisability, and Marked by COVID.

There were actions for every energy level and ability to join, from social media posts to virtual meeting with Congressional leaders, with key dates below.

May 2: Advocacy Month Kickoff
May 4: Remote Congressional Meeting Training
May 10: US House of Representatives
May 11: US House of Representatives 
May 12: World ME Day 
May 17: US Senate 
May 19: Long Covid — Research, Policy and Economic Impact (In-Person Event)
May 26: EmPOWER M.E.

Advocacy Training Videos

Check out these resources below from Solve M.E. Vice President of Advocacy & Engagement, Emily Taylor! 

Solve M.E. Remote Congressional Meeting Training

Advocacy Associates Online Schedule and Logistics Overview

Advocacy Month 2022: Congressional Asks

Advocacy Month 2022: Meeting With Congress

TREAT Long Covid Act: What's in it for M.E.?

Past Advocacy Events

2023 ME/CFS and Long Covid Advocacy Week: In-Person and Online

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2019 ME/CFS Advocacy Week and Washington DC Lobby Day

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2022 ME/CFS and Long Covid Advocacy Month and Online Lobby Days

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2018 ME/CFS Advocacy Week and Washington DC Lobby Day

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2021 ME/CFS and Long COVID Advocacy Week and Online Lobby Day​

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2017 ME/CFS Advocacy Week (joint with #MEAction)

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2020 ME/CFS Advocacy Week and Online Lobby Day

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