2020 ADVOCACY WEEK REPORT

251 Meetings – That’s 47% of Congress!

Thanks to the hard work of our advocacy community, Solve ME/CFS Advocacy Day 2020 was a wild success! 

In 2020, ME/CFS Advocacy Week went digital with entirely remote events and actions that advocates joined from the comfort of their homes.

Across the country you called for ME/CFS research funding, supporting a fast-moving $60 million request! Nearly 360 registered advocates took part in 251 meetings, reaching 47% of Congress in a single day. Over 885 emails and nearly 1,200 phone calls supported our mighty volunteer congressional meetings teams. All of this while responding to a pandemic by shifting to a virtual event (with just four weeks to make the change).

ME/CFS epidemics have historically followed viral outbreaks and the majority of people with ME/CFS were triggered by a viral infection. In light of COVID-19, the field of ME/CFS research is needed now more than ever to find answers and improve the lives of millions.

Solve M.E. called for immediate response measures for ME/CFS in the next COVID-19 response package. We recommended $60 million to be authorized for NIH post-viral neuro-immune research, specifically focusing on ME/CFS and COVID-19.

For more information about 2020 Advocacy Week, visit http://lobby20.solvecfs.org/.

Past Advocacy Events

2023 ME/CFS and Long Covid Advocacy Week: In-Person and Online

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2019 ME/CFS Advocacy Week and Washington DC Lobby Day

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2022 ME/CFS and Long Covid Advocacy Month and Online Lobby Days

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2018 ME/CFS Advocacy Week and Washington DC Lobby Day

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2021 ME/CFS and Long COVID Advocacy Week and Online Lobby Day​

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2017 ME/CFS Advocacy Week (joint with #MEAction)

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2020 ME/CFS Advocacy Week and Online Lobby Day

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