The Importance of a Representative Patient Population for Research

Being able to offer researchers access to ME/CFS patients with demographic and clinical characteristics that represent the full range of people affected with ME/CFS removes a significant hurdle all researchers face. With the SolveCFS BioBank™ we can make ME/CFS research more appealing and accessible. But how do we ensure our SolveCFS BioBank™ is representative of the entire patient population? READ MORE….

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P2P Draft Evidence Review

The Pathway to Prevention draft evidence review has been released. Can a process that seems inappropriate for ME/CFS help inform a path forward? SMCI has utilized the collective brainpower of our Research Advisory Council, led by our scientific director, Suzanne D Vernon, PhD, to perform a careful review and response to the Evidence-Based Practice Centers’ draft evidence-based review for ME/CFS. READ MORE…

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Research Digest – August 2014: More Results from the SolveCFS BioBank

More results from the work being done through the SolveCFS BioBank: We are pleased to report the publication of the initial BioBank study on XMRV and the publication of the first study of epigenetics in ME/CFS. Both used the clinical information and samples from the SolveCFS BioBank that were collected in 2010. READ MORE…

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Guest Blog: Mark A. Demitrack, MD, FAPA – Neurobiology of ME/CFS

Far too often, ME/CFS patients are met with healthcare providers who do not believe in the biological nature of the disease. In this guest blog post, Mark Demitrack, MD, FAPA describes how for a long time he has advocated for and used an integrated approach to understand how the brain is involved in the biology of ME/CFS. READ MORE…

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Research Digest – June 2014: Neuroinflammation in ME/CFS

Neuroimaging has been used to study the structural, functional and metabolic affects of ME/CFS on the brain in ME/CFS patients for the past 25 years. To date there are about 50 papers in the peer-reviewed biomedical literature describing these findings. This month we highlight three publications that directly demonstrate and implicate neuroinflammation in ME/CFS…

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