Watch now: The H.R. 7057 Legislative Cafe Chat Hosted by Emily Taylor Earlier this year, Representative Jaime Raskin introduced H.R. 7057, the Understanding COVID–19 Subsets and ME/CFS Act. This landmark legislation will authorize $60 million over the next four years to expand the National Institutes of Health (NIH) research into post-viral ME/CFS and empower the […]
Join Solve M.E. for an H.R. 7057 Legislative Cafe Chat on Sept. 9! We’ve received dozens of emails from you asking questions about the historic legislation endorsed by Solve M.E. We are thrilled with the engagement you’ve demonstrated with H.R. 7057. To answer your questions, Solve M.E. Advocacy and Engagement Director Emily Taylor has written […]
251 Meetings – That’s 47% of Congress! Thanks to the hard work of our advocacy community, Solve ME/CFS Advocacy Day was a wild success! Across the country you called for ME/CFS research funding, supporting a fast-moving $60m request! 358 registered advocates took part in 251 meetings, touching 47% of Congress in a single day. Over 885 emails and nearly 1,200 phone calls supported our mighty […]
Can you hear M.E. Now? Call Congress Today! We connected with over 47% of congress yesterday. But we’re not done yet! Today we’re focusing on phone calls to DC offices. Use the D.C. Remote Advocate kit to help you make your message *RING* true. Today, you can support our call for $60m of new funding for […]
Looking for a way to make your social media account stand out? We’ve created ME/CFS GIPHY stickers to use on Instagram stories and Twitter, which we think is really easy and exciting. Just search for “SolveME” on Instagram and “Solvemecfs” on Twitter to find our collection. You can find all of our GIPHY Stickers available […]
Full Schedule of ME/CFS Advocacy Week Online Events and Actions now available This year our ME/CFS Advocacy Week will take place online from April 19 to April 26, 2020. Stay home, stay safe, and make your voice heard by phone, email or social media! This year, we are on track to have the biggest ME/CFS Advocacy […]
For our last Advocacy Day event in 2019, many of you joined us in Washington, D.C. to bring your stories to the halls of power and tell the leaders of our country how your lives, and the lives of your loved ones, are impacted by this terrible disease. Your hard work and passionate storytelling paid […]
Solve M.E. Advocacy Week activities this April in Washington, D.C., will be transitioning to entirely remote formats and our team will be cancelling in-person events to protect and preserve the health of our ME/CFS community. Our keystone event, ME/CFS Advocacy Day, brings our ME/CFS research and advocacy community face-to-face with members of Congress. We are […]
The Solve ME/CFS Initiative is one of 12 organizations that have signed a letter asking the heads of the Centers for Disease Control (CDC) and the Agency for Healthcare Research and Quality (AHRQ) to examine the issues raised by journalist David Tuller’s analysis of the U.K.’s £5 million PACE trial for ME/CFS. Read More…
In a recent blog post that originally appeared on TheHill.com, Llewellyn King offers a job description for a Congress member willing to take up the cause of advocating for more ME/CFS research funding. Read More…