Victory! Six Major Federal Wins for ME/CFS

Dear Friends, Throughout 2019, I reported on our advocacy gains for ME/CFS. Thank you for standing with me and our advocacy partners during a particularly turbulent year while we fought for ME/CFS in Washington D.C. Today, with this final FY20 budget update, I’m so happy to report that our tenacity paid off! We achieved unprecedented, […]

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In Memory of Cindy Siegel (Shepler)

Cindy Siegel (Shepler) lived and loved her new life in the City by the Bay and relentlessly pursued medical answers while there. By 1993, in her mid-30s, the lack of adequate treatment forced her to leave a successful life and career in the healthcare industry and return to her hometown of Knoxville.  Please be aware […]

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Postdoctoral Fellow Needed Neuroimaging Projects

Human Neuroimaging Postdoctoral Fellow Neuroinflammation, Pain and Fatigue Laboratory University of Alabama at Birmingham A postdoctoral fellowship position has become available to work on funded ME/CFS neuroimaging projects with Dr. Jarred Younger at the Neuroinflammation, Pain and Fatigue Laboratory; University of Alabama at Birmingham. Position Summary: The Neuroinflammation, Pain and Fatigue Laboratory, under the direction […]

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Top 7 Tips for Claiming Disability Benefits with M.E.

By: Ann Innes This article originally appeared in ME Association I’m Ann Innes, consultant welfare rights adviser to the ME Association and formerly to Stockport ME Group. I run a private service to support people throughout the claims process, from benefit entitlement checks, application, preparing for the face-to-face assessment and attending as an advocate, all the […]

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Learn How ME/CFS Keeps Youth from Attending School

“Why Can’t This Child Get to Class?” Myalgic Encephalomyelitis / Chronic Fatigue Syndrome in the Classroom Northeastern University School Health Academy with joint provider, Massachusetts ME/CFS & FM Association, are conducting an online continuing nursing education program for School Nurses and colleagues. Learn about this debilitating disease which the CDC calls America’s hidden health crisis. […]

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July 10 is Chronic Disease Day

Myalgic Encephalomyelitis (M.E.) is one of many chronic diseases that are widely misunderstood and frequently misrepresented in mainstream media and medical literature. That’s why it’s so important for members of the M.E. community to control the narrative by sharing our own experiences with this disease. Our Humans of M.E. (HoME) campaign, a takeoff of the […]

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