Will COVID-19 Leave An Explosion of ME/CFS Cases in its Wake?

Originally published by Cort Johnson | April 2, 2020 |  Simmaron Research The first SARS epidemic in 2003 featuring SARS-CoV now seems like a poor dress rehearsal for today’s SARS CoV-2 outbreak. With just 8,000 cases in total and 774 deaths, (compared to almost 1,000,000 cases and 4,000 plus deaths and rising rapidly) it seems hardly worth including in […]

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ME/CFS Advocacy Day 2020 Was the Biggest Ever! Help Us Say Thank You

251 Meetings – That’s 47% of Congress! Thanks to the hard work of our advocacy community, Solve ME/CFS Advocacy Day was a wild success! Across the country you called for ME/CFS research funding, supporting a fast-moving $60m request! 358 registered advocates took part in 251 meetings, touching 47% of Congress in a single day. Over 885 emails and nearly 1,200 phone calls supported our mighty […]

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Thank you for attending the 2020 EmPOWER M.E. Roundtable: How to Navigate Disability Insurance with ME/CFS!

Thank you for attending the 2020 EmPOWER M.E. Roundtable: How to Navigate Disability Insurance with ME/CFS! To watch the recording, visit our YouTube channel or click the video below. You can view and download the slides from the presentation here. A special thank you to our moderator, Sharon Stevenson, and our panelists, Dr. Lucinda Bateman, Dr. Christopher Snell, and Moselle C. Leland for sharing […]

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Bhupesh Prusty PhD and the “Big Idea”

Excerpt originally published in The NIH ME/CFS Conference II: Lipkin’s Possibilities, Prusty’s Big Idea… | by Cort Johnson | Apr 15, 2019  There is clearly something in the (ME/CFS) patient’s serum, – Bhupesh Prusty PhD of the University of Würzburg in Germany. What an intriguing character Bhupesh Prusty is. Speaking just minutes after Ian Lipkin reported that he could find no evidence […]

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Explaining ME/CFS: Prusty Naviaux Study Ties Infections to Energy Breakdowns

Originally published by Cort Johnson | Apr 26, 2020 | HealthRising Unexpected synchronies are always a good sign. Many, of course, are familiar with Bob Naviaux, MD, PhD from the University of California, San Diego (UCSD). Naviaux’s metabolomic work and his Cell Danger Response (CDR) hypothesis have opened up new possible ways of understanding ME/CFS, autism and other diseases. Naviaux […]

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Leveraging the You + M.E. Registry to Study COVID-19

While COVID-19 has changed where we work, it has not stopped how hard we work on behalf of the ME/CFS community. Following several months of development, user testing and partnership with the community, we are fast approaching the launch of the You + M.E. Registry! We’ve received several inquiries and thoughts regarding approaches to track […]

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Coronavirus Preparedness For People With Chronic Diseases: What Are The Mental Health Implications?

Webinar Presented by the National Health Council (NHC)  Friday, April 17, 2020: Coronavirus Preparedness For People With Chronic Diseases: What Are The Mental Health Implications? This webinar, presented by our partners at the National Health Council (NHC), will focus on the impact of the coronavirus on mental health in the US. The speakers will discuss […]

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