The Clinical Treatment Act is Delivering Results

After three years of advocacy, Solve M.E. scored a concrete legislative victory with the passage of The Clinical Treatment Act. This covers clinical trial costs for qualifying 74.8M Medicaid participants — including ME/CFS patients — and provides resources for ME/CFS clinical trials. Lowering the costs and barriers for participation in clinical trials is a key priority […]

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A Win for All of Us

Now that our government has narrowly avoided a shutdown, I’d love to share some insights about next year’s federal budget and how we are helping to shape it today. A key goal of Advocacy Day 2021 was to circulate Chairwoman Eshoo and Representative Lofgren’s “e-Dear Colleague” letter, requesting an additional $10 million for the chronic […]

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Why We Support The COVID-19 and Pandemic Response Centers of Excellence Act and the COVID-19 Long Haulers Act

Your advocacy efforts are creating historic opportunities for federal funding of research and ME/CFS education. Two particular pieces of proposed legislation have great potential and I wanted to share my thoughts on each of them Solve M.E. is proud to support The COVID-19 and Pandemic Response Centers of Excellence Act (S. 2307 / H.R.4292). We’re […]

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Will the 21st Century Cures Act Deliver Innovation and Health Breakthroughs for Post-Infection Diseases?

By Emily Taylor, Director of Advocacy and Community Relations Five years ago, the 21st Century Cures Act (Cures Act) was signed into law making national headlines, launching new health initiatives, and spearheading a new chapter in government scientific investment. With robust funding, multiple government agencies rolled out programs designed to accelerate medical product development and […]

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Sign the Petition to Fix the ICD coding of ME/CFS

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are asking that you sign this petition in support of our proposal.  At present, […]

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U.S. ME/CFS Clinician Coalition Releases Updated Clinical Guidance That Could Help Those with Long Covid

The U.S. ME/CFS Clinician Coalition recently released updated clinical guidance for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which may also help individuals suffering from Long Covid symptoms. An article about the guidance was published in Mayo Clinic Proceedings, which is widely read by clinicians. Read it here. The updated clinical guidance from the U.S. ME/CFS Clinician […]

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Solve M.E. and Six Other Organizations Tackle Catastrophic Lack of ME/CFS Case Tracking in the U.S.

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM). Read our press release here. Today, ME/CFS does not exist in the US ICD-10-CM. Instead, most US doctors assign […]

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We’re Taking the CDC’s Draft Review of ME/CFS Diagnosis and Treatment to Congress

In 2018, the Centers for Disease Control (CDC) announced it was soliciting bids to create evidence-based treatment guidelines for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In 2019, the CDC announced a contract with the Pacific Northwest Evidence-Based Practice Center (EPC). The draft of this work, a Draft Systematic Evidence Review, was shared with the public for the […]

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Solve M.E. Advocacy Changing the Face and Funding of Clinical Trials

Lowering the costs and barriers for participation in clinical trials is a key priority for Solve M.E.  For the past three years, Solve M.E. has endorsed and advocated for the passage of H.R. 913, The Clinical Treatment Act. Initially introduced in 2019 by Representatives Ben Ray Lujan (D-NM-03) and Gus Bilirakis (R-FL-12), this new law guarantees coverage […]

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