Advocacy Week 2026 starts this Monday, March 23rd, and this year we’re doing something different.
Instead of meeting with legislators, we’re working with the systems that shape what medical providers in America learn.
We’ll be engaging with patient safety agencies, State Medical Boards, and Chief Medical Officers and asking them to use their institutional authority to champion ME/CFS. Our ultimate goal is to ensure ME/CFS appears on national medical licensing exams, but this week we are focusing on building the relationships that will get us there.
The week is built around writing letters, collecting signatures for community sign-on letters, and personal storytelling – things you can do at your own pace, from home, with templates provided and ready to go.
Register for Advocacy Week here.
Check out our Advocacy Week 2026 Participant Toolkit to see exactly what to expect. It walks you through each day of the week and lets you know what’s happening.
Access the Participant Toolkit
If you have the spoons to sign on to or write one letter next week, it can make a big difference.
Our journey will continue after Advocacy Week. Don’t forget to sign up to stay up to date on this advocacy effort!