Solve M.E. and #MEAction are joining forces for a week of coordinated action designed to move ME/CFS from optional knowledge to the standard of care in clinical training — and to urge Congress to fund the research infrastructure this community deserves.
Taking local and statewide action is a direct route to create change in the current political environment. That’s what Advocacy Week 2026 is about.
March 23–27, we’re reaching out to the Patient Safety Agencies, State Medical Boards, and Chief Medical Officers or equivalent who have the institutional authority to make that recommendation. We’re asking them to use it.
Our 2026 Advocacy Week Actions
- Monday, March 23 — Kickoff & Strategy Overview
Join our live virtual session to learn the full strategy for the week: why we’re approaching medical education reform as a patient safety issue, and how coordinated community action can move the needle.
- Tuesday, March 24 — Patient Safety & Regulatory Agency Outreach
Submit letters to your state’s patient safety and regulatory agencies documenting ME/CFS mismanagement as a formal patient safety and healthcare quality concern — the critical first step in our chain toward national medical exam boards. - Wednesday, March 25 — Federal Social Media Action Day
Contact your Senators and Representatives directly, urging them to support three FY27 appropriations priorities: the CDC ME/CFS Program, the DoD Peer Reviewed Medical Research Program, and the NIH ME/CFS Research Roadmap. - Thursday, March 26 — State Medical Board & Chief Medical Officers (Or Equivalent)
Sign community and clinician letters to State Medical Boards and Chief Medical Officers (or Equivalent) asking them to champion ME/CFS competency as standard-of-care knowledge and recommend ME/CFS questions on national licensure exams.
If ME/CFS questions appear on national medical licensing exams, every medical school in the country has to teach it — not because we convinced them to care, but because clinicians need to pass the test.
This year’s approach meets people where they are. The week is built around letters, sign-on letters, and personal storytelling — things you can do at your own pace, with templates ready to go.
We will have hour-long Zoom calls on Monday, Tuesday, and Thursday to provide context and instructions for our daily actions. These Zoom calls will be recorded.
On Wednesday, we will focus on our efforts to get research funding on a federal level.
Once you’ve registered for Advocacy Week, you’ll get an easy-to-follow Participant Toolkit that walks you through every day of the week — what’s happening, why it matters, and exactly what to do.
Register for Advocacy Week 2026 here: https://tinyurl.com/SolveMEAdvo2026