Advocacy Director Emily Taylor On Sharing the Success of ME/CFS Advocacy Week

During Solve M.E.’s ME/CFS Advocacy Day 2018, 102 people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and their loved ones joined us in the largest Capitol Hill action for the disease to date. Advocates from across the country called for action and funding for ME/CFS research as part of the second annual ME/CFS Advocacy Day. Throughout […]

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Solve M.E., Long COVID Alliance highlighted in U.S. News & World Report

In her U.S. News & World Report article, “In Long COVID, Advocates Battling Chronic Fatigue Syndrome See Allies, Hope,” journalist Chelsea Cirruzzo examines the ME/CFS and Long COVID connection, and how the striking similarities are fueling hopes that research can uncover solutions for both. Mentioned in the piece are Solve M.E. President Oved Amitay and the Long COVID […]

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Advocacy Week Kicks Off with Virtual Keynote Address by Rep. Jamie Raskin

Advocacy Week Kickoff Event with Rep. Jamie Raskin (MD-08) The 5th Annual Solve M.E. Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. Please join us for a week of advocacy activities that everyone can participate in from home! We’re thrilled to announce that our kickoff event will take […]

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Meet Our 2021 Advocacy Week Partners

Advocacy Week Welcomes Partners from Long COVID and Rare Disease Communities The 5th Annual Solve M.E. Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. This year, “ME/CFS & Long COVID Advocacy Day” welcomes our new partners from the Long COVID Alliance and the EveryLife Foundation for Rare Diseases […]

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Registration now open for Solve M.E. 2021 Advocacy Day!

Register for Virtual Advocacy Day today! The 5th Annual ME/CFS Advocacy Day April 20, 2021 The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. This year, “ME/CFS & Long COVID Advocacy Day” welcomes all of our friends and partners from the complex, chronic illness community […]

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10 ME/CFS Organizations Join Solve M.E.’s Letter to Congress Recommending Priorities for Federal COVID-19 Relief Package

Last month, Solve M.E. identified yet another COVID-19 relief package funding opportunity for ME/CFS and worked with our friends on Capitol Hill to outline additional federal post-viral research and medical education investments. Ten other ME/CFS organizations joined Solve M.E.’s efforts to urge Congress to consider additional priorities for the upcoming federal 2021 COVID-19 relief package […]

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ME/CFS Federal Funding: What We Know So Far

Thank you for your patience and for standing with Solve M.E. and our advocacy partners during a particularly turbulent year. Despite unprecedented obstacles, we accomplished victories and produced dollars for ME/CFS research. Though the future of ME/CFS funding in Congress remains uncertain, here’s what we know for sure: We Broke Records for Advocacy Day Despite […]

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Senate Advocacy Action: $60m for ME/CFS Research

Tell Your Senator to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS! Thanks to your hard work during ME/CFS Advocacy Week, the U.S. Senate is currently circulating our request to include ME/CFS research funding in the next COVID-19 package. Our champion, Senator Ed Markey, is leading our initiative to include ME/CFS research funding in future COVID-19 […]

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Watch now! The 2020 EmPOWER M.E. Roundtable: How to Navigate Disability Insurance with ME/CFS!

To watch the recording of the 2020 EmPOWER M.E. Roundtable: How to Navigate Disability Insurance with ME/CFS, visit our YouTube channel or click the video below. You can view and download the slides from the presentation here. A special thank you to our moderator, Sharon Stevenson, and our panelists, Dr. Lucinda Bateman, Dr. Christopher Snell, and Moselle C. Leland for sharing their wisdom with […]

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