We’re Taking the CDC’s Draft Review of ME/CFS Diagnosis and Treatment to Congress

In 2018, the Centers for Disease Control (CDC) announced it was soliciting bids to create evidence-based treatment guidelines for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In 2019, the CDC announced a contract with the Pacific Northwest Evidence-Based Practice Center (EPC). The draft of this work, a Draft Systematic Evidence Review, was shared with the public for the […]

Read More

Watch our H.R. 7057 Town Hall Meeting

Watch now: The H.R. 7057 Legislative Cafe Chat Hosted by Emily Taylor Earlier this year, Representative Jaime Raskin introduced H.R. 7057, the Understanding COVID–19 Subsets and ME/CFS Act. This landmark legislation will authorize $60 million over the next four years to expand the National Institutes of Health (NIH) research into post-viral ME/CFS and empower the […]

Read More

Together, We’re Sponsoring an Historic ME/CFS Legislation!

Four Years of Advocacy has paid off! We’re Proud to have Authored and Initiated the First Ever Legislation for ME/CFS Research Funding, H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act Earlier this week, longtime ME/CFS champion Representative Jaime Raskin of Maryland’s 8th Congressional district introduced landmark legislation for ME/CFS research. This landmark legislation authorizes $60 million […]

Read More

Breaking News: Chronic Fatigue Syndrome Advisory Committee Dissolved

Today, without any prior notice to committee members of the public, the Department of Health and Human Services announced that the charter for the Chronic Fatigue Syndrome Advisory Committee (CFSAC) was allowed to expire. Formed in 2002, CFSAC was the ONLY federal entity focused entirely on ME/CFS.  It included many relevant federal agencies, including NIH […]

Read More