A Win for All of Us

Now that our government has narrowly avoided a shutdown, I’d love to share some insights about next year’s federal budget and how we are helping to shape it today. A key goal of Advocacy Day 2021 was to circulate Chairwoman Eshoo and Representative Lofgren’s “e-Dear Colleague” letter, requesting an additional $10 million for the chronic […]

Read More

Breaking News: Chronic Fatigue Syndrome Advisory Committee Dissolved

Today, without any prior notice to committee members of the public, the Department of Health and Human Services announced that the charter for the Chronic Fatigue Syndrome Advisory Committee (CFSAC) was allowed to expire. Formed in 2002, CFSAC was the ONLY federal entity focused entirely on ME/CFS.  It included many relevant federal agencies, including NIH […]

Read More