On August 8, Severe M.E. Day, we reflect on the tremendous toll this devastating disease takes on those suffering from severe ME/CFS and remember the loved ones we have lost.
As you know, people living with severe ME/CFS are often bed-bound, unable to perform everyday tasks without assistance, and some need 24-hour care. It is enourmously challenging and too often it is a battle being fought without the recognition and support needed.
If you are suffering from severe ME/CFS, you are not alone!
We see you, we stand with you, and we are here, fighting alongside you so that you can get your life back.
Today, we also recognize and honor the unwavering support of caregivers, family members, and friends. Your ability to help improve the lives of your loved ones is critical and does not go unnoticed. Thank you for all you do — we could not do this without you.
As we reflect on the challenges severe ME/CFS presents, we also remember that none of us have to do this alone. Together we can make progress!
- Share your stories to Humans of Chronic Illness, or help someone with severe ME/CFS share their story.
- Find resources through support groups such as the Center for Chronic Illness, the ME/CFS Phone Support Group, or visit Solve M.E.’s resources for people with ME/CFS and caregivers webpage.
- Join our upcoming Caregiver Corner session with Stephanie Harrison, founder of The New Happy on August 14 at 12PM PT. “Resilience Tools for Difficult Times” is geared toward caregivers looking to support their own well-being as they care for loved ones.
- Consider making a gift to make breakthroughs possible.
Last year, we had the unique opportunity to collaborate with disability and LGBTQ advocate Jessica Kellgren-Fozard to create an informational video about severe ME/CFS and raise awareness of this disease with her YouTube community of nearly 1 million subscribers. You can see that video here: