Press Briefing Transcript and Audio Recording for the CDC Telebriefing Update on COVID-19

Originally posted Wednesday, February 26, 2020 | CDC Press Briefing https://www.cdc.gov/media/releases/2020/t0225-cdc-telebriefing-covid-19-update.mp3   Please Note: This transcript is not edited and may contain errors. Welcome and thank you for standing by.  At this time, all participants are on listen-only mode until our question and answer session.  At that time, if you would like to ask a question, […]

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2019 Congressional Champions of ME/CFS

The following is a list of our Congressional Champions who supported ME Research and Funding. In order to increase funding for ME/CFS research and education, we had TWO appropriations request letters: DEFENSE & LABOR-HHS. Labor-HHS Appropriations: Preserved $5.4 million for 2020 to fund the Multi-site Clinical Assessment of ME/CFS (which recently expanded into pediatric study) and […]

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“The Biology of ME/CFS: Emerging Models” with Anthony L. Komaroff, M.D.

Transcript and audio recording now available for the September 2019 ME/CFS CDC conference call with Anthony L. Komaroff, M.D. Previously recorded, September 16, 2019 CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stakeholder Engagement and Communication (MECFS-SEC) Click Transcripts to read more. Click Audio to listen to the full meeting. Note: THE CDC CFS Patient-Centered Outreach and Communication Activity (PCOCA) has […]

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Learn How ME/CFS Keeps Youth from Attending School

“Why Can’t This Child Get to Class?” Myalgic Encephalomyelitis / Chronic Fatigue Syndrome in the Classroom Northeastern University School Health Academy with joint provider, Massachusetts ME/CFS & FM Association, are conducting an online continuing nursing education program for School Nurses and colleagues. Learn about this debilitating disease which the CDC calls America’s hidden health crisis. […]

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Update on August 1 Meeting with Dr. DeSalvo from HHS

Earlier this week, Jen Brea, Terri Wilder, Carol Head, Jennie Spotila, and Mary Dimmock met with Dr. Karen DeSalvo, acting assistant secretary for health. The purpose of the August 1 meeting was to impress upon Dr. DeSalvo how woefully inadequate the response to this disease from the U.S. Department of Health and Human Services (HHS) has been—that it is still too slow and too little—and to call on HHS to dramatically step up its commitment to ME. Read More…

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