Our Strategic Commitment, Critical Initiatives and Growing Team

Dear Solve community members, As summer evolves into autumn, I write to share news about our continuing evolution and growth. In the last several months, we deepened our strategic commitment to identifying diagnostics and treatments for people with ME/CFS and Long Covid, sharpened our focus on translational research, made significant progress on the initiatives that […]

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The Clinical Treatment Act is Delivering Results

After three years of advocacy, Solve M.E. scored a concrete legislative victory with the passage of The Clinical Treatment Act. This covers clinical trial costs for qualifying 74.8M Medicaid participants — including ME/CFS patients — and provides resources for ME/CFS clinical trials. Lowering the costs and barriers for participation in clinical trials is a key priority […]

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A Win for All of Us

Now that our government has narrowly avoided a shutdown, I’d love to share some insights about next year’s federal budget and how we are helping to shape it today. A key goal of Advocacy Day 2021 was to circulate Chairwoman Eshoo and Representative Lofgren’s “e-Dear Colleague” letter, requesting an additional $10 million for the chronic […]

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You + ME Anniversary: 2021 Ramsay Researchers!

It’s our one-year anniversary and we’re celebrating all month! Today, we announce our 2021 Ramsay Researchers! The Solve M.E. Ramsay Grant Program is designed to build a workforce, with a special focus on early-career investigators, and to allow researchers to generate data to support larger grant applications. The Ramsay network now includes more than 60 researchers around […]

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Solve M.E./UCLA Announce Pilot Funding for ME/CFS Research

Second year of Solve/UCLA partnership September 2021–Solve M.E. is again partnering with the University of California, Los Angeles (UCLA) Iris Cantor Women’s Health Center to fund ME/CFS research through their Annual Health Pilot Program. This round of funding follows last year’s, which supported a clinical study assessing the effects of repetitive transcranial magnetic stimulation (rTMS) in ME/CFS. Solve’s […]

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You + ME Turns One!

What a Year!  We grew to nearly 5,000 members and are on track to reach 10,000 by mid-2022, creating a more and more robust resource for researchers.  [Click here to enroll.] We gathered more than 2.4 million data points, more than doubling the number in four months. We incorporated Long Covid data to enhance our understanding of […]

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U.S. ME/CFS Clinician Coalition Releases Updated Clinical Guidance That Could Help Those with Long Covid

The U.S. ME/CFS Clinician Coalition recently released updated clinical guidance for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which may also help individuals suffering from Long Covid symptoms. An article about the guidance was published in Mayo Clinic Proceedings, which is widely read by clinicians. Read it here. The updated clinical guidance from the U.S. ME/CFS Clinician […]

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Newly Published Research Connects ME/CFS and Covid-19

Unique collaboration between Harvard, Johns Hopkins and citizen-scientist supported by Solve M.E. A comprehensive review of ME/CFS and Long Covid research published this week suggests that symptoms of both may be caused by redox imbalance, which is linked to inflammation and reduction of cellular energy production. [Redox imbalance occurs when oxidants and antioxidants in a […]

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Solve M.E. and Six Other Organizations Tackle Catastrophic Lack of ME/CFS Case Tracking in the U.S.

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM). Read our press release here. Today, ME/CFS does not exist in the US ICD-10-CM. Instead, most US doctors assign […]

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