Watch now! Oved Amitay talks to Llewellyn King on “ME/CFS Alert”

In the most recent episode of “ME/CFS Alert,” host Llewellyn King interviewed Solve M.E. President and CEO, Oved Amitay. Oved, a registered pharmacist and public health expert who has dedicated his professional career to the development of therapeutic options for people affected by rare genetic diseases, spoke to King about the recent $1.15 billion congressional […]

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Meet Our 2021 Advocacy Week Partners

Advocacy Week Welcomes Partners from Long COVID and Rare Disease Communities The 5th Annual Solve M.E. Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. This year, “ME/CFS & Long COVID Advocacy Day” welcomes our new partners from the Long COVID Alliance and the EveryLife Foundation for Rare Diseases […]

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Solve M.E. Spearheads Formation of Long COVID Alliance to Accelerate Post-Infectious Research

  Today, Solve M.E. warmly welcomes 50 new partners in the fight to return millions of Americans to health. The Long COVID Alliance, launched by Solve M.E., is a network of patient-advocates, scientists, disease and public health experts, and drug developers, who have joined together to leverage our collective knowledge and resources to educate policy […]

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NIH launches database to track neurological symptoms associated with COVID-19

A new database will collect information from clinicians about COVID-19-related neurological symptoms, complications, and outcomes as well as COVID-19 effects on pre-existing neurological conditions. The COVID-19 Neuro Databank/Biobank (NeuroCOVID), which was created and will be maintained by NYU Langone Health, New York City, will be a resource of clinical information as well as biospecimens from […]

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Press Briefing Transcript and Audio Recording for the CDC Telebriefing Update on COVID-19

Originally posted Wednesday, February 26, 2020 | CDC Press Briefing https://www.cdc.gov/media/releases/2020/t0225-cdc-telebriefing-covid-19-update.mp3   Please Note: This transcript is not edited and may contain errors. Welcome and thank you for standing by.  At this time, all participants are on listen-only mode until our question and answer session.  At that time, if you would like to ask a question, […]

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2019 Congressional Champions of ME/CFS

The following is a list of our Congressional Champions who supported ME Research and Funding. In order to increase funding for ME/CFS research and education, we had TWO appropriations request letters: DEFENSE & LABOR-HHS. Labor-HHS Appropriations: Preserved $5.4 million for 2020 to fund the Multi-site Clinical Assessment of ME/CFS (which recently expanded into pediatric study) and […]

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“The Biology of ME/CFS: Emerging Models” with Anthony L. Komaroff, M.D.

Transcript and audio recording now available for the September 2019 ME/CFS CDC conference call with Anthony L. Komaroff, M.D. Previously recorded, September 16, 2019 CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stakeholder Engagement and Communication (MECFS-SEC) Click Transcripts to read more. Click Audio to listen to the full meeting. Note: THE CDC CFS Patient-Centered Outreach and Communication Activity (PCOCA) has […]

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Learn How ME/CFS Keeps Youth from Attending School

“Why Can’t This Child Get to Class?” Myalgic Encephalomyelitis / Chronic Fatigue Syndrome in the Classroom Northeastern University School Health Academy with joint provider, Massachusetts ME/CFS & FM Association, are conducting an online continuing nursing education program for School Nurses and colleagues. Learn about this debilitating disease which the CDC calls America’s hidden health crisis. […]

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