The Clinical Treatment Act is Delivering Results

After three years of advocacy, Solve M.E. scored a concrete legislative victory with the passage of The Clinical Treatment Act. This covers clinical trial costs for qualifying 74.8M Medicaid participants — including ME/CFS patients — and provides resources for ME/CFS clinical trials. Lowering the costs and barriers for participation in clinical trials is a key priority […]

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A Win for All of Us

Now that our government has narrowly avoided a shutdown, I’d love to share some insights about next year’s federal budget and how we are helping to shape it today. A key goal of Advocacy Day 2021 was to circulate Chairwoman Eshoo and Representative Lofgren’s “e-Dear Colleague” letter, requesting an additional $10 million for the chronic […]

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Why We Support The COVID-19 and Pandemic Response Centers of Excellence Act and the COVID-19 Long Haulers Act

Your advocacy efforts are creating historic opportunities for federal funding of research and ME/CFS education. Two particular pieces of proposed legislation have great potential and I wanted to share my thoughts on each of them Solve M.E. is proud to support The COVID-19 and Pandemic Response Centers of Excellence Act (S. 2307 / H.R.4292). We’re […]

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Will the 21st Century Cures Act Deliver Innovation and Health Breakthroughs for Post-Infection Diseases?

By Emily Taylor, Director of Advocacy and Community Relations Five years ago, the 21st Century Cures Act (Cures Act) was signed into law making national headlines, launching new health initiatives, and spearheading a new chapter in government scientific investment. With robust funding, multiple government agencies rolled out programs designed to accelerate medical product development and […]

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You + ME Anniversary: 2021 Ramsay Researchers!

It’s our one-year anniversary and we’re celebrating all month! Today, we announce our 2021 Ramsay Researchers! The Solve M.E. Ramsay Grant Program is designed to build a workforce, with a special focus on early-career investigators, and to allow researchers to generate data to support larger grant applications. The Ramsay network now includes more than 60 researchers around […]

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You + ME Turns One!

What a Year!  We grew to nearly 5,000 members and are on track to reach 10,000 by mid-2022, creating a more and more robust resource for researchers.  [Click here to enroll.] We gathered more than 2.4 million data points, more than doubling the number in four months. We incorporated Long Covid data to enhance our understanding of […]

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U.S. ME/CFS Clinician Coalition Releases Updated Clinical Guidance That Could Help Those with Long Covid

The U.S. ME/CFS Clinician Coalition recently released updated clinical guidance for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which may also help individuals suffering from Long Covid symptoms. An article about the guidance was published in Mayo Clinic Proceedings, which is widely read by clinicians. Read it here. The updated clinical guidance from the U.S. ME/CFS Clinician […]

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Newly Published Research Connects ME/CFS and Covid-19

Unique collaboration between Harvard, Johns Hopkins and citizen-scientist supported by Solve M.E. A comprehensive review of ME/CFS and Long Covid research published this week suggests that symptoms of both may be caused by redox imbalance, which is linked to inflammation and reduction of cellular energy production. [Redox imbalance occurs when oxidants and antioxidants in a […]

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Solve M.E. and Six Other Organizations Tackle Catastrophic Lack of ME/CFS Case Tracking in the U.S.

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM). Read our press release here. Today, ME/CFS does not exist in the US ICD-10-CM. Instead, most US doctors assign […]

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