Advocacy Week 2025 will take place virtually throughout the week of June 23rd to June 27th, 2025.

Advocacy Week is a nationwide advocacy effort to connect people with ME/CFS and associated conditions; scientists; clinicians, and caregivers to share their unique stories with Congress. Our ultimate goal is to make these conditions widely understood, diagnosable, and treatable.

There will be actions for every energy level and ability to join, from social media posts to virtual meetings with congressional leaders. We will have levels of messaging tailored to beginning, intermediate, and experienced advocates.

Make Your Voice Heard – Help Educate Congress on ME/CFS and Associated Conditions!

“We shape our own destiny. With a new Congress and administration, we have a fresh opportunity to introduce ME/CFS and associated conditions to new decision-makers and build strong relationships that will shape the future of research, healthcare, and support for our community.

This year, we are making sure every Member of Congress — especially new members — learns about ME/CFS and associated conditions and understands the urgent issues affecting millions of Americans. By working together, we can foster champions in Washington who will help drive meaningful change.” — Emily Taylor, President and CEO, Solve M.E.

Your voice matters, and your story can make a real impact. Let’s connect, educate, and inspire action — together!

Join us for Solve M.E.’s 2025 Advocacy Week from June 23-27 to take action, meet with Members of Congress, and ensure these conditions are impossible to ignore in Washington.

This year’s Advocacy Week is 100% virtual! You can participate from home, making it easier than ever to engage with your representatives and advocate for change.

Schedule: 

Monday, June 23rd: Virtual Meet-Ups: Connect With Your Team!

Tuesday, June 24th: Senate Education Day 

Wednesday, June 25th: Social Media Day

Thursday, June 26th: House Education Day

Friday, June 27th: EmpowerME

Why Your Participation Matters: 

Advocacy works best when people share their experiences. At the beginning of a new administration, it’s crucial to get our issues on the radar of our representatives. Investing in building these relationships now will ensure that we have champions to fight for us when we need them the most.

By building relationships with Congress, we can:

Push for More Research Funding – ME/CFS and associated conditions are severely underfunded. We must educate lawmakers about the urgent need for increased NIH investment to drive new treatments and cures.

Improve Healthcare Access – Most doctors receive little to no training on these conditions. Advocacy efforts help secure support for medical education programs so patients get better care.

Strengthen Disability & Healthcare Support – Many people with these conditions, including veterans, struggle to access Social Security benefits and appropriate medical care. Lawmakers must hear how they can help.

How You Can Take Action During Advocacy Week

Meet with Your Members of Congress & Staff – Solve M.E. will schedule your virtual meetings and provide all the training you need to confidently advocate. No experience necessary!

Share Your Story – Personal experiences drive change. Lawmakers need to hear directly from patients, caregivers, and healthcare providers about the real-world impact of these conditions.

Become a Trusted Resource – Offer to be a go-to contact for these issues. Help Congressional offices stay informed on the latest research, legislative efforts, and patient challenges.

Stay Engaged & Follow Up – Advocacy isn’t just one week! Build lasting relationships by keeping lawmakers updated, and thanking them for their support.

Sign Up for Solve M.E.’s 2025 Virtual Advocacy Week Today!

Event Dates: June 23-27, 2025
Registration Deadline: May 12, 2025

Virtual Only – Participate from Home!

REGISTER NOW 

The stronger our voices, the greater our impact. Join us this June and help us make sure every leader in Washington understands the urgent need for ME/CFS research and care.