Dear Friends,
I am deeply saddened to learn of the passing of #MEAction co-founder and Board Co-Chair Beth Mazur. Beth was a passionate patient advocate who promoted technology as a tool for health equity and the empowerment of people with ME/CFS, and the impact of her work will be felt for years to come.
Solve Board Member and former CEO Carol Head knew Beth and recalled, “Beth was brilliant. Together with Jen Brea, Beth formed an organization that has benefited patients and their families for nearly a decade. In the formative stages of #MEAction, Beth and Jen reached out to talk through their vision for the organization; I was honored that they would want to run their ideas by me. Beth was gracious, kind and stunningly sharp which strengthened her deep commitment. I very much admired her, and I’m heartbroken to learn that a brilliant light in the ME/CFS field has gone out.
If any good can come from this terrible loss, perhaps it will be a broader public understanding of the seriousness of this disease and that ME/CFS can be life-threatening. Beth’s long struggle and now her death is why we doggedly do what we do, why our community advocates and organizations continue to relentlessly pursue diagnostics, treatments, and cures for people like Beth and the millions who suffer and leave us.”
Solve Board member and ME/CFS and Long Covid patient advocate Cynthia Adinig commented on social media, “She was such a warm person to me. It hurts to see those who have been in this battle not make it. If nothing else this furthers my urgency to help those who have been here long before I became severe. ME patients deserve better than what is available today.”
Our thoughts are with Beth’s loved ones and the entire #MEAction community.
In light of this difficult news, please take a moment to review and share this information on resources and nationwide helplines provided by #MEAction.
Yours in hope,
Kristin Jacobson
President and CEO
Solve M.E.
