The contents below are adapted from a join press release from Solve and partners. Read the full release here.
The Infection Associated Chronic Conditions Understanding and Engagement (ICUE) Project announces an upcoming webinar that promises to shed light on the pressing needs and priorities of the infection associated chronic conditions (IACC) community. We invite you to join us as we unveil the key findings from a report summarizing engagement sessions with participating organizations over the past year.
Date: Tuesday October 24, 2023
Time: 9:00am PT / 12:00pm ET
Webinar Link: https://bit.ly/IACCPACWebinar
This webinar will provide a comprehensive overview of the findings of a new report on the top priorities, essential needs, and future goals related to infection associated chronic conditions. The report’s findings were gathered through a series of workshops that brought together diverse disease groups and patient organizations. Participants in these focus groups included people living with Long COVID, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS) and other forms of dysautonomia, mast-cell activation syndrome (MCAS), Ehlers-Danlos syndrome (EDS), Lyme disease, and other post-viral or infection-associated conditions.
Key topics to be covered during the webinar include:
- Community Voices: Hear directly from those living with infection-associated chronic conditions, sharing their experiences and perspectives.
- Priority Areas: Discover the most urgent shared needs and concerns identified by our community.
- Future Goals: Learn about our collective vision for advancing research, awareness, and support for IACCs.
- Action Steps: Find out how you can get involved and make a difference in the lives of those affected by IACCs through our newly forming Infection Associated Chronic Conditions Patient Advocacy Coalition.
We encourage all stakeholders, including healthcare professionals, researchers, patients, caregivers, and advocates, to attend this informative session. Together, we can build a stronger, more resilient IACC community and work toward a healthier future.