Myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS) is a complex and chronic disease that can have a serious impact on one’s quality of life. Patients can experience a variety of symptoms ranging in intensity from mild to extremely severe. While ME/CFS is four times more likely to affect women than men, this […]
During Solve M.E.’s ME/CFS Advocacy Day 2018, 102 people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and their loved ones joined us in the largest Capitol Hill action for the disease to date. Advocates from across the country called for action and funding for ME/CFS research as part of the second annual ME/CFS Advocacy Day. Throughout […]
This year the one-year anniversary of the first confirmed case of COVID-19 in the United States. It’s difficult to overstate the impact the COVID-19 pandemic has had on the world and on life in the United States. The past year has presented challenges none of us could have anticipated — a devastating loss of human […]
After an eight-month politically-charged rollercoaster, Congress ended 2020 by passing a $900 billion COVID-relief package and a $1.4 trillion FY21 budget simultaneously. This giant bill, totaling over 5,500 pages, was signed into law on December 27th. It contained direct payments to citizens, expanded unemployment benefits, included new provisions for clinical trials, and most importantly, new […]
This is our biggest victory, yet! Earlier this month, Solve M.E. led the charge for federally funded research into Long-COVID and myalgic encephalomyelitis (ME) — previously known as chronic fatigue syndrome (CFS). We authored this letter, joined by 20 leading chronic disease and health equity stakeholders, and met with dozens of legislators to discuss these federal […]
Since 2017, unleashing the potential research funds from the Department of Defense (DOD) for ME/CFS has been one of our highest priorities. After more than three years of hard work, the first ME/CFS awards *ever* funded by Peer Reviewed Medical Research Program (PRMRP) have been announced! This has been a really hard year for all of […]
We’re thrilled to announce that enrollment in the You + ME Registry has reached 2,000 participants! This would not have been possible without the support of this amazing community. Together, you have not only contributed over 1 million data points that can help drive new research, but also actively engaged with us in the design and continued […]
November is National Family Caregivers Month, offering an opportunity to acknowledge the vital contributions made by family caregivers everywhere. In the ME/CFS community, we know the difference a loving caregiver can make in the life of a person who suffers from debilitating illness. According to the National Alliance of Caregiving (NAC), some 53 million Americans […]
As we strive to make myalgic encephalomyelitis, otherwise known as chronic fatigue syndrome, or ME/CFS, more diagnosable and treatable, we are always aware that many people suffer with this disease in silence — they might be invisible to others. To improve the lives of individuals suffering with ME/CFS, we are committed to shedding light and […]
A recent article about COVID-19 “long haulers” in the peer-reviewed medical journal The Journal of the American Medical Association (JAMA) referenced Solve M.E. and our You + ME Registry and Biobank. In “As Their Numbers Grow, COVID-19 ‘Long Haulers’ Stump Experts,” writer Rita Rubin details the persistent symptoms of those long haulers who have yet […]