We’re Taking the CDC’s Draft Review of ME/CFS Diagnosis and Treatment to Congress

In 2018, the Centers for Disease Control (CDC) announced it was soliciting bids to create evidence-based treatment guidelines for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In 2019, the CDC announced a contract with the Pacific Northwest Evidence-Based Practice Center (EPC). The draft of this work, a Draft Systematic Evidence Review, was shared with the public for the […]

Read More

Registration now open for Solve M.E. 2021 Advocacy Day!

Register for Virtual Advocacy Day today! The 5th Annual ME/CFS Advocacy Day April 20, 2021 The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. This year, “ME/CFS & Long COVID Advocacy Day” welcomes all of our friends and partners from the complex, chronic illness community […]

Read More

10 ME/CFS Organizations Join Solve M.E.’s Letter to Congress Recommending Priorities for Federal COVID-19 Relief Package

Last month, Solve M.E. identified yet another COVID-19 relief package funding opportunity for ME/CFS and worked with our friends on Capitol Hill to outline additional federal post-viral research and medical education investments. Ten other ME/CFS organizations joined Solve M.E.’s efforts to urge Congress to consider additional priorities for the upcoming federal 2021 COVID-19 relief package […]

Read More

ME/CFS Federal Funding: What We Know So Far

Thank you for your patience and for standing with Solve M.E. and our advocacy partners during a particularly turbulent year. Despite unprecedented obstacles, we accomplished victories and produced dollars for ME/CFS research. Though the future of ME/CFS funding in Congress remains uncertain, here’s what we know for sure: We Broke Records for Advocacy Day Despite […]

Read More

Journal of the American Medical Association (JAMA) article brings awareness to Long COVID and Solve M.E. Registry as a tool for research

A recent article about COVID-19 “long haulers” in the peer-reviewed medical journal The Journal of the American Medical Association (JAMA) referenced Solve M.E. and our You + ME Registry and Biobank. In “As Their Numbers Grow, COVID-19 ‘Long Haulers’ Stump Experts,” writer Rita Rubin details the persistent symptoms of those long haulers who have yet […]

Read More

Winning and Waiting: A Federal Funding Update for ME/CFS

What you Need to Know: The Senate Appropriations Committee included our ME/CFS Advocacy Day request for Defense. If approved in the final budget, ME/CFS will be an eligible topic area for the Peer-Reviewed Medical Research Program (PRMRP), which is funded at $350 million next year. If the combined Senate and House bills pass, ME/CFS researchers could apply for […]

Read More

Report from the CDC Medical Education Roundtable

On Thursday, August 30, Solve M.E.’s Chief Scientific Officer Dr. Sadie Whittaker attended the Center for Disease Control and Prevention (CDC) Roundtable on Medical Education and ME/CFS in Atlanta, GA. In this short video, she discusses the conference with Scientific Administrator Allison Ramiller and explains why advocacy with government agencies like the CDC is important […]

Read More