Last month, Solve M.E. identified yet another COVID-19 relief package funding opportunity for ME/CFS and worked with our friends on Capitol Hill to outline additional federal post-viral research and medical education investments.
Ten other ME/CFS organizations joined Solve M.E.’s efforts to urge Congress to consider additional priorities for the upcoming federal 2021 COVID-19 relief package to continue building on the momentum of the $1.15 billion investment announced in December. While we’re encouraged by the recently-announced congressional investment in long COVID research, our work is far from complete. We’ll keep fighting to ensure that post-viral illnesses become better understood, diagnosable, and treatable.
The letter recommends support for other government agencies—the Centers for Disease Control and Prevention (CDC), Agency for Healthcare Research and Quality (AHRQ) and the Patient-Centered Outcomes Research Institute (PCORI)—as well as interagency collaboration and stakeholder engagement via a Long COVID Commission. Congress plays a crucial role in addressing unmet needs in medical education, access, and patient outcomes, all of which we believe can best be achieved by lending support to these agencies.
Solve M.E. warmly thanks our other signatories, including: #MEAction, Open Medicine Foundation, Institute for Neuro-Immune Medicine Nova Southeastern University, Bateman Horne Center, Simmaron Research, Whittemore Peterson Institute, Pandora, Minnesota ME/CFS Alliance, Florida ME/CFS Patient United, and Massachusetts ME/CFS & FM Association.
Read the letter in its entirety here.
Save the Date!
The 5th Annual ME/CFS Advocacy Week
April 18-24, 2021
The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021.
To protect the health of our advocates and congressional representatives, ME/CFS Advocacy Week 2021 will remain virtual with remote access to all events.
ME/CFS Advocacy Week connects people with ME/CFS, their loved ones, advocates, scientists, clinicians and caregivers from across the country to demand more action and research funding, coordinate with other advocates, and share their unique stories with members of Congress, together in one voice.
We’ll be announcing our full schedule of events in the near future. Stay tuned!