The 5th Annual ME/CFS Advocacy Day
April 20, 2021
The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021.
This year, “ME/CFS & Long COVID Advocacy Day” welcomes all of our friends and partners from the complex, chronic illness community to participate FROM HOME in this virtual event.
This year’s keystone event is Advocacy Day, on Tuesday, April 20. This VIRTUAL event connects you, and hundreds of other advocates like you, directly with your members of Congress using personalized online conversations. Just a few hours of your time can make a difference at the highest levels of government. We have accommodations for all levels of health, experience, and skill. No experience necessary — don’t miss this special opportunity!
To register for a virtual meeting with Congress, please visit https://lobbydayregistration.wufoo.com/forms/wrhhmgk0az2gr2/.
For more information about additional events, online training and activities, please visit https://solvecfs.org/advoweek21/.
Advocacy is often most rewarding and effective when done together. To stay on top of Advocacy Week updates and join a community of fellow advocates, please join our Facebook group at https://www.facebook.com/groups/474483793564162.
The 2nd Interagency ME/CFS Working Group Meeting Tackles Long COVID, ME/CFS Resources
The Centers for Disease Control and Prevention (CDC) and National Institute of Health (NIH) are hosting the 2nd ME/CFS interagency meeting next week. The working group will address workforce development and education of ME/CFS healthcare providers as well as share updates about current activities to address prolonged illness following COVID-19, post-acute COVID-19 syndrome (PACS) also referred to as “long COVID.”
The first day includes a discussion on clinical care for ME/CFS with a presentation on the need by patient orgs and the clinical perspective based on a survey of ME/CFS clinicians. The second day is on Long COVID Interagency ME/CFS Working Group Meeting.
The events will be held on Feb. 25 & 26 at 1PM ET. Attendees have the option to register for both webinars but must register for each day separately.
Register to attend here.