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12 events found.

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  • December 2022

  • Thu 15
    Webinar graphic for Dec. 15 10am pt event, "Challenges in Ensuring Equity In the Study and Treatment of ME/CFS and Long Covid"

    Challenges in Ensuring Equity In the Study and Treatment of ME/CFS and Long Covid

    December 15, 2022 @ 10:00 am - 11:00 am PST
    Online

    Co-presented by Peter Rowe, MD (Professor of Pediatrics, Director, Johns Hopkins Children’s Center Chronic Fatigue Clinic) and Camille Broussard, MD, MPH (Assistant Professor in the Division of Adolescent and Young Adult Medicine at Johns Hopkins School of Medicine), this webinar will explore the dissonant results of epidemiologic studies that suggest Latinx and Black individuals have […]

  • February 2023

  • Tue 21

    Solve M.E. and BIO co-host “Long Covid: What Will It Take To Accelerate Therapeutic Progress?”

    February 21, 2023 @ 10:00 am - 1:00 pm UTC+8

    Solve M.E. and The Biotechnology Innovation Organization (BIO) will co-host a three-hour virtual event “Long Covid: What Will It Take to Accelerate Therapeutic Progress?” on Tuesday, February 21 from 10:00 AM - 1:00 PM PT (1:00 - 4:00 PM ET).  Our goal is to convene stakeholders to advance research and development to diagnose and treat […]

  • April 2023

  • Tue 25
    US FDA PFDD Meeting

    FDA Patient-Focused Drug Development Public Meeting for Long Covid

    April 25, 2023 @ 10:00 am - 4:00 pm EDT
    Online

    The US Food and Drug Administration (FDA) is hosting a virtual public meeting on Patient-Focused Drug Development for Long Covid on Tuesday, April 25th, 2023, from 10 a.m. to 4:00 p.m. ET.  It will be conducted with live translation in both English and Spanish. Patient-Focused Drug Development meetings are important and infrequent opportunities for patients to provide […]

  • Thu 27

    Effects of Long Covid and ME/CFS on Sleep

    April 27, 2023 @ 11:00 am - 12:00 pm PDT
    Online

    Many individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection, about 60% of people self-report lingering sleep difficulties, even if they had a mild course of acute COVID-19. Unrefreshing […]

  • August 2023

  • Fri 25

    NIH ME/CFS Research Roadmap Series: Nervous System

    August 25, 2023 @ 10:00 am - 2:00 pm EDT

    The first ME/CFS Research Roadmap webinar will take place on August 25, 2023, from 10:00 am – 2:00 pm ET. Focusing on how ME/CFS impacts the nervous system, presenters will describe current research, knowledge gaps, and future research opportunities in this area. There will be Q&A sessions during which attendees can ask questions and contribute […]

  • October 2023

  • Wed 4

    October 4, 2023 @ 11:00 am - 12:00 pm PDT
    Online

    Join Solve Senior Director of Research Leslie E. Phillips, PhD for a walkthrough of our new patient-centered data platform, Solve Together! In this webinar, we'll share information about joining the platform, share tips for maximizing built-in tools for participants, and answer your questions. Solve Together is fully accessible by smartphone and will allow participants to […]

  • Thu 19

    ME/CFS RESEARCH ROADMAP WEBINAR SERIES

    October 19, 2023 @ 8:00 am - 9:00 am PDT
    Online

    Tomorrow's NINDS ME/CFS Research Roadmap webinar at 11AM ET will focus on how ME/CFS impacts the immune system, current research, knowledge gaps, and future research opportunities.   Register here.   A recording of the first session, focusing on the nervous system, is available here.

  • December 2023

  • Thu 7

    The Patient-Doctor Partnership: Optimally Treating People with Long Covid and ME/CFS Across the US

    December 7, 2023 @ 12:00 pm - 1:00 pm PST

    Solve welcomes three medical providers who will share their experience with treating Long Covid, ME/CFS, POTS, and dysautonomia patients across rural, urban, and suburban settings. Dr. Melanie Hoppers (co-founder and Chief Medical Officer at Physicians Quality Care, in Jackson, TN), Dr. William Pittman (co-director of the UCLA Long COVID Program), and Dr. Tiffany Walker (Principal […]

  • Mon 11

    Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID

    December 11, 2023 - December 13, 2023
    Online

    NIH ME/CFS Research Roadmap Webinar Series August - December 2023 This virtual webinar series is part of a larger effort to develop a Research Roadmap for ME/CFS, which will identify research priorities to move the field toward translational studies and clinical trials. Save the date for two NIH ME/CFS events in December 2023! Additional details will be […]

  • January 2024

  • Mon 22

    Changes in the Gut Microbiome in ME/CFS and Long Covid

    January 22, 2024 @ 1:00 pm - 2:00 pm UTC+0

    Solve Ramsay Research Grant winner David Esteban, PhD, (Assoc. Professor of Biology, Vassar College) will discuss ongoing work in his lab determining whether there is a link between changes in the gut microbiome and disease in ME/CFS and Long Covid. The collection of bacteria in the gut, known as the gut microbiome, produces many small […]

  • February 2024

  • Wed 28

    Webinar: Hydrogen Water Dosing Study for ME/CFS: A New Clinical Trial

    February 28, 2024 @ 11:30 am - 12:30 pm PST

    Free radicals are molecules with one or more unpaired electrons in their outer shells. They tear holes in cell membranes, releasing an overabundance of even more free radicals and preventing […]

  • April 2024

  • Mon 29

    Symptom Management and Patient Empowerment Through The Long Covid Wearable Study

    April 29, 2024 @ 1:00 pm - 2:00 pm PDT

    The lived experiences of people with ME and Long Covid have shown that activity management, or pacing, can be an effective method of reducing symptom severity. However, pacing is difficult […]

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