Each year on August 8, Severe ME Day, we reflect on the tremendous toll this devastating disease takes on individuals suffering from severe ME/CFS symptoms and remember the lives of those we have lost. People living with severe ME/CFS are often bed-bound and unable to perform everyday tasks without assistance — eating, showering, and even […]
Myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS) is a complex and chronic disease that can have a serious impact on one’s quality of life. Patients can experience a variety of symptoms ranging in intensity from mild to extremely severe. While ME/CFS is four times more likely to affect women than men, this […]
After months of collaborative development with community members and researchers, we opened the You + ME Registry for enrollment in June 2020. You + ME is driven by a big vision — building a community of thousands contributing health information to create the largest dataset ever for ME/CFS research. Many research projects have come to […]
Rep. Jamie Raskin’s landmark legislation, H.R. 7057, The Understanding COVID-19 and ME/CFS Subsets Act, will be the first piece of legislation to authorize funding from the National Institutes of Health (NIH) for ME/CFS research and education. As of October 1, H.R. 7057 has an impressive 43 co-sponsors, and this includes 3 new Republicans, Rep. Bill […]
Watch now! The Congressional Roundtable on Women’s Chronic Illness During a Pandemic Last week, as part of our collaboration with the Congressional Bipartisan Women’s Caucus, Miles for Migraine, and the Headache and Migraine Policy Forum, Solve M.E. hosted a virtual congressional briefing on COVID-19, ME/CFS, and Migraine Disease. Moderated by two-time Emmy nominated TV host, […]
Solve M.E. Chief Executive Officer Oved Amitay and Solve M.E. Research Advisory Council Member Dr. Anthony L. Komaroff (Professor of Medicine at Harvard Medical School and Senior Physician at Brigham & Women’s Hospital in Boston) recently published an op-ed piece about the urgent need to study the emerging connection between COVID-19 long-haulers and ME/CFS in […]
To watch the recording of the 2020 EmPOWER M.E. Roundtable: How to Navigate Disability Insurance with ME/CFS, visit our YouTube channel or click the video below. You can view and download the slides from the presentation here. A special thank you to our moderator, Sharon Stevenson, and our panelists, Dr. Lucinda Bateman, Dr. Christopher Snell, and Moselle C. Leland for sharing their wisdom with […]
In this webinar, our partners at the National Health Council focused on the impact of the Coronavirus on mental health in the US. The speakers discussed the increase in anxiety as well as gave general advice for self-care and advice for LGBTQ youth on coping with stress during the COVID-19 crisis. This webinar is intended […]
Originally posted Wednesday, February 26, 2020 | CDC Press Briefing https://www.cdc.gov/media/releases/2020/t0225-cdc-telebriefing-covid-19-update.mp3 Please Note: This transcript is not edited and may contain errors. Welcome and thank you for standing by. At this time, all participants are on listen-only mode until our question and answer session. At that time, if you would like to ask a question, […]
You + ME is a patient registry and biobank for the ME/CFS community. While Solve M.E. has long had a registry and biobank, we are transitioning to an interactive platform that will serve as a data hub for the ME/CFS community. You can help us bring the big data revolution to ME/CFS research Join the You […]