April 2018

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View the full presentation from Discovery Forum 2017 with Dr. Cindy Bateman, Founder & Chief Medical Officer of the Bateman Horne Center and Solve M.E. Research Advisory Council member (Ad hoc). Dr. Bateman discussed the need for improved research and clinical care infrastructure for ME/CFS patients and how this drove the formation of March’s Clinician’s Summit.

The Ramsay Awards provide competitive grant funding in basic, preclinical, clinical, or epidemiology research of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). It is open to investigators at any career stage. We are looking for researchers who want to make an impact. Learn more about applying for a Ramsay Research Grant here

RAMSAY 2017: MEET RESEARCH TEAM 2

The Ramsay Award program is a foundation of Solve M.E.’s commitment to explore all worthy research avenues. This program aims to move the field forward by funding innovative research across many disciplines, bringing new researchers in the myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) field, and providing seed dollars so that researchers can go on to obtain funds for larger studies in their areas of expertise. In 2017, we chose five scientifically diverse teams to fund. We are proud to introduce you to our 2017 Ramsay Research Team 2.

Recent Autoimmune Therapy Study from Ramsay 2016 & 2017 Grantee Carmen Scheibenbogen

Immune dysregulation has been regularly described in studies of ME/CFS and there is substantial evidence for at least a subset of patients with an autoimmunity cause of the disease. Dr. Carmen Scheibenbogen, a researcher at Charité—Universitätsmedizin Berlin in Germany and the recipient of two Solve M.E. Ramsay Awards, has emerged as a major player in pursuit of this hypothesis. Read more here.

Thank you to Dr. Silvestri for two years of service on Solve M.E.’s Research Advisory Council

Michel Silvestri, PhD, completed his two-year term on Solve M.E.’s Research Advisory Council (RAC) in March 2018. The RAC is a critical component of SMCI’s commitment to research and its members provide invaluable counsel on the research program’s initiatives. We are grateful to Dr. Silvestri for his service. 

Francis Collins testifies before US House Subcommittee, receives questions on ME/CFS

On April 11, the US House Appropriations Subcommittee on the Labor, Health and Human Services, and Education (Labor-HHS) held a substantial hearing in next year’s budget process, specifically examining the budget and spending priorities of the National Institutes of Health. The key feature of the hearing included nearly two hours of testimony from Dr. Francis Collins, Director of the National Institutes of Health, who fielded questions from members of the committee on dozens of issues.

Solve M.E., working with other advocates, requested that several members of the committee ask Dr. Collins about ME/CFS in this public forum. We are pleased to share that Congresswoman Lucille Roybal-Allard (CA-40) agreed to submit questions concerning ME/CFS in writing to Dr. Collins as part of the hearing’s record.

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