Solve ME/CFS Initiative Hosts IOM Briefing in D.C.

On March 25, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., on the IOM report on ME/CFS [SEID]. The briefing gathered congressional representatives, reporters, government officials and researchers while more than 300 viewed the event through a live webcast. The landmark report was reviewed and Carol Head made a strong and compelling call for more federal research funding. Read More…

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Guest Blog: Dr. Lucinda Bateman on the Discussion Surrounding the IOM Report

Lucinda Bateman, MD, specializes in the diagnosis and management of unexplained chronic fatigue, ME/CFS and fibromyalgia. Having served on the IOM committee that produced the recent report, Beyond ME/CFS: Redefining an Illness, she brings an in-depth, well-informed opinion to the conversation surrounding the IOM report on ME/CFS, the new diagnostic criteria and the proposed name, Systemic Exertion Intolerance Disease (SEID). READ MORE…

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Guest Blog: Changing the Conversation – IOM Report Sparks Re-evaluation of ME/CFS in the Media

On Tuesday the IOM released its report, “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness”. This landmark report has been highlighted the media this week in more than 300 articles including JAMA, Annals, Science, Nature and a host of accessible lay media including NYT, Al Jazeera America, NPR, CBS Online and HealthDay. In this guest blog, Cort Johnson discusses how the IOM report is changing the conversation. READ MORE…

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