Watch our H.R. 7057 Town Hall Meeting

Watch now: The H.R. 7057 Legislative Cafe Chat Hosted by Emily Taylor Earlier this year, Representative Jaime Raskin introduced H.R. 7057, the Understanding COVID–19 Subsets and ME/CFS Act. This landmark legislation will authorize $60 million over the next four years to expand the National Institutes of Health (NIH) research into post-viral ME/CFS and empower the […]

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Together, We’re Sponsoring an Historic ME/CFS Legislation!

Four Years of Advocacy has paid off! We’re Proud to have Authored and Initiated the First Ever Legislation for ME/CFS Research Funding, H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act Earlier this week, longtime ME/CFS champion Representative Jaime Raskin of Maryland’s 8th Congressional district introduced landmark legislation for ME/CFS research. This landmark legislation authorizes $60 million […]

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42 Members of Congress Deliver for ME/CFS

Thanks to another strong turnout from the ME/CFS advocacy community, 14 Senators and 28 Congressional Representatives joined together to sign this bipartisan letter to the U.S. Department of Health and Human Services (HHS) in support of people with ME/CFS. The bicameral letter was sponsored by Senator Ed Markey (MA) in the Senate and Congresswoman Anna Eshoo […]

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Breaking News: Chronic Fatigue Syndrome Advisory Committee Dissolved

Today, without any prior notice to committee members of the public, the Department of Health and Human Services announced that the charter for the Chronic Fatigue Syndrome Advisory Committee (CFSAC) was allowed to expire. Formed in 2002, CFSAC was the ONLY federal entity focused entirely on ME/CFS.  It included many relevant federal agencies, including NIH […]

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