Resources for Patients and Caregivers

Please excuse our dust – this page is under construction.

As someone living with and managing ME/CFS, we know you have questions.

A great place to get started is with our SMCI Webinar Series with discussions with clinical and researchers and experts about ME/CFS.

To stay updated on recent developments, sign up for our free Research1st e-newsletter.

You can also visit the ME/CFS webpage created by the Centers for Disease Control for additional information and materials.

While this webpage is currently under construction, we have provided here a few key items to empower you with more information.

  • ME/CFS: A Primer for Clinical Practitioners. (link to pdf here) July 2014. The “go-to” guide for clinical care, this primer for adult cases was published by the International Association for CFS and ME (IACFSME) and authored by a committee of experts. This is a great resource to provide to your doctor.
    • Link to download the Primer (PDF)
    • Link to Primer homepage (HTML)
  • ME/CFS FM Treatment Advice. Dr. Lucinda Bateman. Dr. Bateman, one of the foremost experts on ME/CFS and a member of SMCI’s Research Advisory Committee provides advice on managing ME/CFS.
    • Link to Treatment Advice (PDF)
    • “Pearls of Wisdom,” Chronicle article from Dr. Lucinda Bateman (PDF)

You can also visit the ME/CFS webpage created by the Centers for Disease Control (CDC) for additional information and materials. We recognize that the CDC webpage is still evolving and SMCI looks forward to working with the CDC to facilitate continuing improvements.