Resources for Patients and Caregivers
Please excuse our dust – this page is under construction.
As someone living with and managing ME/CFS, we know you have questions.
A great place to get started is with our SMCI Webinar Series with discussions with clinical and researchers and experts about ME/CFS.
To stay updated on recent developments, sign up for our free Research1st e-newsletter.
You can also visit the ME/CFS webpage created by the Centers for Disease Control for additional information and materials.
While this webpage is currently under construction, we have provided here a few key items to empower you with more information.
- Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. February, 2015. One of the most comprehensive reports regarding ME/CFS, this report was published by the National Academy of Medicine and includes a diagnostic criteria, clinicians guide, and comprehensive literature review.
- ME/CFS: A Primer for Clinical Practitioners. (link to pdf here) July 2014. The “go-to” guide for clinical care, this primer for adult cases was published by the International Association for CFS and ME (IACFSME) and authored by a committee of experts. This is a great resource to provide to your doctor.
- ME/CFS – FM Treatment Advice. Dr. Lucinda Bateman. Dr. Bateman, one of the foremost experts on ME/CFS and a member of SMCI’s Research Advisory Committee provides advice on managing ME/CFS.
You can also visit the ME/CFS webpage created by the Centers for Disease Control (CDC) for additional information and materials. We recognize that the CDC webpage is still evolving and SMCI looks forward to working with the CDC to facilitate continuing improvements.