Advocacy Week Welcomes Partners from Long COVID
and Rare Disease Communities
The 5th Annual Solve M.E. Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. This year, “ME/CFS & Long COVID Advocacy Day” welcomes our new partners from the Long COVID Alliance and the EveryLife Foundation for Rare Diseases to participate FROM HOME in this virtual event.
In 2021, the Solve ME/CFS Initiative has expanded our annual advocacy events in order to bring together advocates from many complex chronic illness communities, including: myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long COVID, postural orthostatic tachycardia syndrome (POTS), other forms of dysautonomia, Ehlers-Danlos syndrome (EDS), hypermobility spectrum disorder (HSD) and mast cell activation syndrome (MCAS), just to name a few. The Long COVID Alliance joined together to leverage their collective knowledge and resources to educate policymakers and accelerate research that will address the challenges faced by “COVID long haulers” and related post-viral illnesses.
The issues brought to the forefront by Long COVID have a direct impact on our communities. This is why it is important that we come together to amplify our voices on Capitol Hill.
Working together with these patient-advocates, their loved ones, scientists, clinicians and caregivers from across the country will strengthen our collective call to action.
Together, in one voice, we will fight for a stronger federal investment in research, education, and care for people with complex, chronic illnesses.
This year’s keystone event is Advocacy Day, on Tuesday, April 20. This VIRTUAL event connects you, and hundreds of other advocates like you, directly with your members of Congress using personalized online conversations. Just a few hours of your time can make a difference at the highest levels of government. We have accommodations for all levels of health, experience, and skill. No experience necessary — don’t miss this special opportunity!
To register for a virtual meeting with Congress, please visit https://lobbydayregistration.wufoo.com/forms/wrhhmgk0az2gr2/
Please visit https://solvecfs.org/advoweek21/ for more information about additional events, online training and activities.