ME/CFS and COVID-19 Long-Haulers: Read Our Op-Ed in The Guardian

Solve M.E. Chief Executive Officer Oved Amitay and Solve M.E. Research Advisory Council Member Dr. Anthony L. Komaroff (Professor of Medicine at Harvard Medical School and Senior Physician at Brigham & Women’s Hospital in Boston) recently published an op-ed piece about the urgent need to study the emerging connection between COVID-19 long-haulers and ME/CFS in The Guardian.

An alarming number of COVID-19 survivors report that they continue to experience symptoms for 100 days or more after their initial infection. This group, called “long-haulers,” are developing chronic, debilitating symptoms after infection. This “post-infectious fatigue syndrome” can follow common infections, and the symptoms of post-COVID long haulers can be indistinguishable from those typical of ME/CFS.

In their op-ed, Amitay and Komaroff suggest that the study of COVID-19 long-haulers may shed light on ME/CFS and post-infectious fatigue syndromes following infections other than COVID-19. They advocate for the collection of as much data as possible while we are still in the early phases of the COVID-19 era, and for the passage of bills like H.R. 7057 (The Understanding COVID-19 Subsets and ME/CFS Act) to increase funding for the study of ME/CFS.

“Let’s study the long-haulers now,” Amitay and Komaroff write. “This research could improve care for the millions who have been infected by the COVID-19 coronavirus – and those who already have ME/CFS, as well.”

Read The Guardian op-ed in its entirety here.

Register for our August 27 webinar “Will COVID-19 Lead to ME/CFS in Some People?” by Dr. Anthony L. Komaroff here.

Register for Our August 27 Webinar “Will COVID-19 Lead to ME/CFS in Some People?”

Thu, Aug 27, 2020 10:00 AM – 11:00 AM PDT

People with myalgic encephalomyelitis (also known as Chronic Fatigue Syndrome, or ME/CFS) commonly report that an infection preceded their chronic illness. A number of viruses have been implicated as triggers of ME/CFS, including previous coronavirus strains (e.g. the 2003 SARS coronavirus outbreak). Now, as the novel coronavirus (SARS-CoV-2) sweeps the world, experts predict that a significant number of people will develop post-viral problems that could be lifelong. There are already reports that COVID-19 “long-haulers” still have lingering symptoms, even more than 100 days post-infection.

Join Dr. Anthony L. Komaroff for a discussion of what we know so far about the connection between COVID-19 and ME/CFS, questions we should be asking, and the research efforts that are forming in response to this unique opportunity to understand post-viral illness. Ahead of the webinar, be sure to check out Dr. Komaroff’s blog post on the Center for Solutions for ME/CFS website: Will There Be a Post-COVID-19 Form of ME/CFS?

Register here.

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