Honoring People with ME/CFS for Invisible Disabilities Week

As we strive to make myalgic encephalomyelitis, otherwise known as chronic fatigue syndrome, or ME/CFS, more diagnosable and treatable, we are always aware that many people suffer with this disease in silence — they might be invisible to others.

To improve the lives of individuals suffering with ME/CFS, we are committed to shedding light and increasing understanding of this debilitating disease. Solve M.E. is proud to support Invisible Disabilities Week.

Awareness has many forms: amongst family and friends; amongst healthcare providers, scientists, and researchers; and particularly amongst lawmakers and political leaders. We know how crucial it is that ME/CFS receive federal funding, be actively researched, and increasingly understood by the general public.

Using Legislation to Increase Funding and Visibility

This year, Solve M.E. proudly endorsed H.R. 7057, the Understanding COVID–19 Subsets and ME/CFS Act. H.R. 7057 authorizes funding and coordinates National Institutes of Health (NIH) research and data collection for ME/CFS and COVID-19 “long haulers.” It also removes present legislative barriers to ME/CFS federal funding and education programs. With those barriers removed, our advocacy work has new opportunities to grow funding for ME/CFS like never before.

To read the bill in its entirety and see a full listing of co-sponsors, visit this link.

How you can help make ME/CFS more visible:

  • Contact your representatives and ask them to co-sponsor H.R. 7057 today
  • Download and use our Invisible Disabilities Week graphics on your social media channels
  • Fuel our education and awareness efforts by donating to Solve M.E. today

 

Our Advocacy Efforts Pay Off: $547,000 Awarded from Defense Department for ME/CFS Research!

After three years of hard work and over 10,000 community emails to Congress, Solve M.E. successfully added ME/CFS as an eligible topic area for the Peer Reviewed Medical Research Program (PRMRP). This program received $350 million in FY 2020, for which ME/CFS researchers submitted seven compliant applications. Two applications were funded, totaling over $547,000 in new federal ME/CFS research funding.

Our combined advocacy paid off! Thank you for helping us deliver dollars to researchers in a big win for the ME/CFS community!

 

We are so grateful for your passion in advocating for people with ME/CFS! In addition to lending your voice, you can make a gift of any amount to Solve M.E. We will put your donation to work, reaching further for changes in research, legislation, and education. Your gift is crucial to the fight against ME/CFS!