Each year on August 8, Severe ME/CFS Awareness Day, we reflect on the tremendous toll this devastating disease takes on individuals suffering from severe ME/CFS symptoms and remember the lives of those we have lost. People living with severe ME/CFS are often bed-bound and unable to perform everyday tasks without assistance — eating, showering, and […]
Physical Activity and Post-COVID Conditions Courtney Matrunick, PT, DPTNeurological Physical Therapist and Certified Aquatic Therapist – UNC Health Care &Heidi Greata PT, DPT Vestibular Physical Therapist – UNC Hospital A CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices. Register here.
NIH's next ME/CFS telebriefing will be held on August 26, 2022 from 3:00- 4:00 pm ET. The telebriefing will include updates from NIH on ME/CFS-related research activities and a presentation by Lily Chu, MD, MSHS, Vice President of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME), on highlights from the IACFS/ME 2022 Virtual Medical […]
Solve M.E. is continuing our event series with the Global Interdependence Center with a congressional panel on September 8 at 10 am PT/ 1 pm ET. This Zoom webinar will feature Congressmen Bergman and Beyer, authors of the COVID-19 Long Hauler Act, as well a discussion of Long Covid Policy with patient, medical, and organization […]
Long COVID & Fatiguing Illness Recovery Program Presenters include: Peter C. Rowe, MD Director of the Chronic Fatigue Center at Johns Hopkins Children’s Center Professor of Pediatrics at Johns Hopkins University School of Medicine Katherine Rowe, MD Charles W. Lapp, MD Amanda Morrow, MD Laura Malone MD, PhD Ella Eastin A CDC-funded monthly webinar-style ECHO […]
What is Occupational Therapy? How can it help people with ME/CFS? Amy Mooney, MS OTR/L, will share her expertise and what patients should know if they are looking for an Occupational Therapist. This webinar will describe occupational therapy’s role for providing symptom management and improving the quality of life for individuals with ME/CFS. Amy will […]
Our friends at Aila Health are hosting a free Long Covid Summit on Wednesday, September 21 8 AM - 3 PM PT to bring together specialists, longhaulers, caregivers, advocacy organizations, researchers and health system leaders to shed light on invisible illness and why Long Covid needs more attention. Solve M.E. Vice President of Advocacy and […]
The National Center for Health Research is hosting a national conference on October 3 featuring Long Covid healthcare professionals and patient advocates about effective treatments and interventions for Long Covid, as well as research that is needed or underway. Speakers and panel discussions will include topics such as autoimmune diseases, challenges for caregivers, overlap of […]
The Finnish Association of Orthopaedic Manual Therapy (FIAOMT) is hostng an international conference of ME/CFS and Long Covid – Treatment and Rehabilitation is held in Tampere Finland (also online) on 7-8 October 2022. The conference presents current information about ME/CFS and Long Covid. This two-day conference will review the challenges of understanding the pathophysiology, risk […]
Research Update Featuring: Avindra Nath, MD (Clinical Director of National Institute of Neurological Disorders and Stroke – NIH; Chief of the Section of Infections of the Nervous System – NIH; Director of the Translational Neuroscience Center – NIH) Article: https://academic.oup.com/brain/article/145/7/2555/6621999 Hector Bonilla, MD (Associate Professor of Medicine and Infectious Diseases – Stanford University Medical Director […]
Since the beginning of the pandemic, SARS-CoV-2 has been suspected of causing chronic fatigue syndrome (ME/CFS). A well-controlled cohort study conducted by a group of researchers from Charité - Universitätsmedizin Berlin and the Max Delbrück Center for Molecular Medicine (MDC) has now shown that in the subset of patients who suffer from fatigue and exertion […]
The RECOVER Research Review (R3) Seminar Series will host a panel discussion titled, "Understanding the Biomarkers of PASC” on Tuesday, November 8th 12:00-1:30 PM EDT featuring: Michael Peluso, MD, University of California, San Francisco Mohamed Abdel-Mohsen, PhD, The Wistar Institute David R. Walt, PhD, Harvard Medical School; Brigham and Women's Hospital Grace McComsey, MD, University […]
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