Each year on August 8, Severe ME/CFS Awareness Day, we reflect on the tremendous toll this devastating disease takes on individuals suffering from severe ME/CFS symptoms and remember the lives of those we have lost.
People living with severe ME/CFS are often bed-bound and unable to perform everyday tasks without assistance — eating, showering, and even standing are made nearly impossible. Their symptoms can worsen from light, sound, and movement. Some need 24-hour care. These severe symptoms can prevent members of our community from accessing medical care and support and lead to isolation from family and friends.
Stay tuned for more information about honoring those suffering from severe ME/CFS.