For new and seasoned advocates alike, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other […]
Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. All coordination calls are at 4 pm PT / 7 pm ET. Stay tuned for call registration info. See the map above to identify which group to join to […]
Advocacy Week 2024 will take place virtually throughout the week of April 15th to April 19th, 2024. Advocacy Week is a nationwide advocacy effort to connect people with ME/CFS, Long Covid, and associated conditions; scientists; clinicians, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS, Long Covid, and […]
As part of Advocacy Week 2024, our EmPOWER M.E. roundtable on April 19 at 9 am PT / 12 pm ET will feature panels of patient advocates, professionals, and scientists who share their expertise on topics relevant to the quality of life for people with ME/CFS, Long Covid, and their caregivers. The EmPOWER M.E. topic […]
The lived experiences of people with ME and Long Covid have shown that activity management, or pacing, can be an effective method of reducing symptom severity. However, pacing is difficult to implement. Many people living with energy-limiting conditions have utilized wrist-worn wearables, or activity trackers, to help implement pacing. To validate the value of using […]
**Webinar date changed to May 8, 2024** Dr. David Putrino and Dr. Jamie Wood, of the Icahn School of Medicine at Mount Sinai, have conducted several landmark studies on Long Covid. Their extensive research has led them to suspect that the immune responses of people with Long Covid differ in important ways from the immune […]
Solve is a proud co-founder of the World ME Alliance and we invite you to join us this year for the World ME Day event Bridging Borders – Global Voices from the World ME Alliance! Solve M.E. President and CEO and World ME Alliance Co-Chair Emily Taylor will represent Solve as one of the many nonprofit […]
People with chronic illnesses often have compromised immune systems or ongoing health issues that can affect how they respond to vaccines. The effectiveness and potential side effects of vaccines may differ for these individuals compared to the general population. Individuals with chronic illnesses may be at a higher risk of experiencing adverse reactions to vaccines. […]
Orthostatic intolerance (OI) describes a group of circulatory disorders whose symptoms are characterized by a dramatic drop in blood flow to the brain when people are sitting for long periods or standing still. It is often associated with other acute issues, such as substantial drops in blood pressure, tachycardia, dizziness, fainting, or other long-term problems, […]
On Thursday, October 3, 2024, Solve M.E. will host a free educational webinar featuring Assistant Professor Rob Wüst from the Vrije Universiteit (Amsterdam, Netherlands), who will discuss skeletal muscle fatigue and post-exertional malaise in patients with Long Covid and the implications for ME/CFS. Dr. Wüst received a Solve M.E. Ramsay Research Grant in 2022 to […]
ME/CFS has a broad spectrum of severity, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light, sound, and movement, and some may […]
Please join us for the final, culminating webinar of the Infection-Associated Chronic Conditions Understanding and Engagement (ICUE) project, where we will discuss the findings and results from the project as well as on-going efforts to collaborate across the IACC community on advancing awareness, clinical care, patient support and research. During this webinar, you will hear […]
