On October 16 from 1:30 PM – 3:00 PM EST, FDA will hold a teleconference that is open to the public. Your voice is important in the dialogue.
Clearing the Air – We must galvanize around ME/CFS in order to conquer it.
We feel that the Canadian Clinical Consensus can be optimized as a clinical case definition by applying a standardized methodology of execution, through validation of criteria, and a nationwide dissemination to health professionals.
At 5:00pm, September 23, we received the following message from the CFSAC Listserv, confirming the plans to move forward… Read the full announcement.
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of HHS.
September is Pain Awareness Month; we wanted to bring you some resources about managing the pain associated with ME/CFS. For a long time pain was not thought to be a prominent symptom in ME/CFS, but muscle pain, joint pain and headache are common in ME/CFS patients.
CDC CFS Patient-Centered Outreach and Communications Activity (PCOCA) Conference Call, open to all on September 10, 3pm EST. You can help us achieve synergy that will help move research forward, faster. LEARN MORE about how you can help…
Guest Blog – A Shift Towards Hope, Carollynn Bartosh
I attended my first CFS Advisory Committee (CFSAC) meeting on May 22nd & 23rd in Washington DC. I was there as the newest staff representative of the Solve ME/CFS Initiative , sitting in as a member of the public vs. an official seat at the table. While I have worked for non-profit advocacy groups – […]