Oved Amitay is a pharmacologist by training, a drug-developer by trade, and a patient-advocate by choice. Oved has dedicated most of his professional career to the development of life-changing therapeutic options for people affected by rare genetic diseases, that resulted in eight Orphan Drugs approved by the FDA. While not rare, infection-associated diseases are also poorly understood, are often missed or misdiagnosed, and suffer from lack of research funding and interest. Oved is using his extensive biotech experience to help bring a change to this space.
Throughout his career, Oved has had extensive engagements with healthcare systems and patient advocacy organizations around the world, forging collaborations for patient registries and natural history studies for drug development. Oved uses his extensive background to advance research initiatives, and foster public-private partnerships. Oved’s leadership and expertise are recognized by government agencies, researchers and the community, and he is invited often to speak about these topics.
Oved served as Chief Business Officer at CENTOGENE (NASDAQ: CNTG), a global leader in the diagnostics of rare hereditary disorders. He held the position of President and Chief Operating Officer at Arrett Neuroscience, where he led the company’s efforts to develop therapies for Rett syndrome. Prior to that, Oved had senior executive positions at top-tier biotech companies- Alnylam Pharmaceuticals (NASDAQ: ALNY) and Genzyme Corporation (now Sanofi Genzyme).
Patient Representative
Ilise Friedman has worked in development for over two decades, most recently in the independent school sector: at Turning Point School, where she served for 5 years as Director of Advancement, and previously at Campbell Hall School, where she spent 10 years as Associate Director of Advancement.
She received her BA in Sociology from UC Santa Cruz, graduating with honors. After working as an Executive Assistant after college, she found her calling to help others by serving as the Director of Development for Gateway Center of Monterey County, an adult residential and vocational facility. At Gateway, Ms. Friedman was responsible for the organization’s grant writing, foundation relations, and fundraising events.
Ms. Friedman has managed numerous volunteer committees and finds great joy in working with community members from a diverse range of backgrounds. From 2001-2005, Ms. Friedman worked as the Gala Director for the International Tennis Hall of Fame in New York and Rhode Island. She also served as a volunteer manager for the Salvation Army immediately following the 2001 terror attacks.
She has also worked as a Development Officer for the Starlight Children’s Foundation; an Outreach Volunteer post-hurricane Sandy via SeabrightRising.org and Habitat for Humanity. She also served on the scholarship panel for the Nordstrom Foundation, granting $10,000 scholarships to high school juniors in Los Angeles County who exhibited exemplary community service.
Tim advises Solve M.E. on data, AI, and research strategy to advance precision medicine for MECFS, Long Covid, and other post-infection diseases. He is an author and reviewer for the JCO Clinical Cancer Informatics and a member of the NINDS MECFS Biospecimen Resource Access Committee. Previously, Tim oversaw research funding at both the American Society for Radiation Oncology and the NIH. He has been recognized with awards such as the NIH Directors Award, NCATS Directors Award, NIAID Merit Award, the U.S. Department of State Embassy Science Fellowship, and the American Association for the Advancement of Science (AAAS) Science and Technology Policy Fellowship.
Simcox-Clifford-Higby Professor of Medicine at Harvard Medical School; Senior Physician at Brigham and Women’s Hospital, Boston, MA
Anthony Komaroff, MD, is an Internal Medicine physician and a foremost expert in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since the late 1980s. As of 1993, he has been a professor at Harvard Medical School in the United States, holding the title of the Steven P. Simcox, Patrick A. Clifford and James H. Higby Distinguished Professor of Medicine.[1][2]
Dr. Komaroff serves on the team for the Center for Solutions for ME/CFS at Columbia University, a Collaborative Research Center (CRC) partially funded by the National Institutes of Health (NIH).[3]
Dr. Nneka Orji is a seasoned health economist and global health policy expert with over 15 years of experience. With a foundation in clinical medicine and advanced degrees in health economics and public health, she specializes in improving healthcare access and optimizing outcomes for underserved populations.
Her work spans global organizations like WHO and the UN, focusing on health financing, policy development, and disease control. An accomplished researcher, Dr. Orji has published extensively and received multiple accolades, including the Australian Awards in Africa Scholarship.
Passionate about advancing universal health coverage, she combines technical expertise with visionary leadership to drive equitable health system improvements worldwide. Follow her on Twitter: @dr_orji.
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