With a focus in three key areas (bioenergetics, immunity and inflammation, and neuroendocrine biology), SMCI is launching multiple initiatives in partnership with biotech companies, medical clinics, and universities.
BioBank and Patient Registry
SMCI’s BioBank supports the work of qualified ME/CFS researchers to accelerate progress, while our state-of-the-art Patient Registry, operated in collaboration with Dr. Susan Levine, is supported by the Robert Wood Johnson Foundation/Genetic Alliance White Label PEER Program.
Ramsay Award Program
This competitive, peer-reviewed grant program funds promising research and draws new researchers to the field.
Bioenergetics Deep Dive
Our organization is launching a multi-milliondollar,multi-year biogenetics umbrella study made up of several individually ambitious studies.
Engaging with Key Federal Agencies
SMCI is a go-to organization for the CDC and NIHregarding funding and research strategy for ME/CFS. President Carol Head, with other advocates, was recently part of meetings with the Acting Assistant Secretary of HHS.
Creating Momentum on Capitol Hill
SMCI coordinates briefings, meetings, and strategic alliances with key congressional members/staff and was a leader in the effort to reinstate the FY 2016 budget for ME/CFS research at the CDC.
SMCI partners with global organizations and advocates to bring coordinated, strategic messaging to all areas of policy.
Making ME/CFS Part of the Conversation
President Carol Head serves on the Chronic Fatigue Syndrome Advisory Committee (CFSAC), which makes recommendations to HHS and endorses or opposes legislation that may affect ME/CFS patients.
Bringing Together the Research, Advocacy, and Patient Communities
SMCI brings relevant scientific research to the community in an accessible manner, backs patient-centered research, and calls for policies and funding to improve the lives of patients.