Solve M.E. and Bateman Horne Center (BHC) recently co-hosted a webinar on caregiving and Severe M.E. for the benefit of patients and caregivers navigating life with severe ME/CFS. The webinar focuses on navigating health systems, role changes, daily care, caregiver mental health, and maintaining healthy relationships.
In this webinar moderated by BHC Education and Deputy Director Tahlia Ruschioni, our panel of experienced caregivers shares practical tips, resources, and unique insights.
Watch the video here.
Panelists include:
Galen Warden, mother to an adult son with Severe ME.
Amy Mooney, mother to a teen daughter with Severe ME.
Kim Moy, wife to a husband with Severe ME.
Kyle Kitzmiller, husband to a woman with Severe ME. (Physics Girl)
You can download materials from the webinar at the links below.
Severe M.E. Caregivers Resource Guide
Severe M.E. Caregivers Webinar Slide Deck
Severe ME Caregivers Webinar Transcript
This four-part webinar series presented by Solve M.E. and the Bateman Horne Center features medical professionals, legal experts, scientists, and care partners discussing tips for caregiving, legal perspectives on individual rights, strategies for addressing treatment challenges for medical providers, and the latest research breakthroughs impacting people with Severe ME.
While this series is focused on Severe ME, the information shared will be relevant to other severe chronic illnesses, as well as people with moderate to mild ME/CFS, Long Covid, and other infection-associated chronic conditions and illnesses (IACCIs).
Each webinar takes place from 10-11 am PT (11 am – 12 pm MT).
Topics and dates for the remaining events are:
• November 13: Legal rights
• December 4: Medical care
• January 15: Research
Register for one or more of the events in the series here:
https://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw
The content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.