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US Government Seeks Public Input on the Definition of Long Covid

A National Academies of Sciences, Engineering, and Medicine (NASEM) committee will conduct a series of public workshops to examine the current U.S. Government (USG) working definition for Long Covid and related technical terms. 

The workshop series will consist of several sessions designed to:

  • Explore literature on definitions for Long Covid in the United States, including but not limited to, definitions that are currently used for clinical care, research, surveillance, and health communication;
  • Learn about challenges and barriers due to currently available definitions for Long Covid; and
  • Seek input from various stakeholder groups relating to refinement, dissemination, and implementation of a definition for Long Covid. 

The workshop series will conclude with a 2-day workshop June 22-23 discussing potential considerations for refined Long Covid definitions, terminology, and harmonizing efforts for patient engagement, clinical care, research, surveillance, across USG and relevant stakeholders. 

discussing potential considerations for refined Long Covid definitions, terminology, and harmonizing efforts for patient engagement, clinical care, research, and surveillance, across USG and relevant stakeholders. 

The committee will define the specific topics to be addressed, develop the workshop agendas, and select and invite speakers and other participants. 

The Planning Committee on Examining the Working Definition for Long Covid invites the public to participate in a questionnaire about how to best define Long Covid. Results will be reviewed by the National Academies as they examine the U.S. Government’s working definition for Long Covid.

Share your views on how the U.S. Government should define Long Covid here. Complete the questionnaire by May 12.

Participants may enter additional text in the Long Covid Definition online public comment portal by June 12.

Additionally, the NASEM committee tasked with defining Long Covid still has open spots available for their Patients, Caregivers, and Patient Organizations Focus Group. This focus group is taking place next Saturday, April 29, from 3:00 p.m. – 5:30 p.m. ET.

To learn more about and register for this and other focus groups for examining the working definition of Long Covid, see the link below. 

https://events.nationalacademies.org/04-26-2023_focus-groups-for-examining-the-working-definition-for-long-covid/begin

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