Leveraging EHR/Real World Data to Understand PASC
Join the National Health Institutes (NIH) RECOVER Research Review (R3) Seminar Series, “Leveraging EHR/Real World Data to Understand PASC,” by registering here: http://ow.ly/sZep50Jg45C. The goal of the R3 Seminar Series is to […]
Solve M.E. Calls For Congressional Action After Budget Delays Thwart ME/CFS Research Centers
The National Institutes of Health (NIH) recently published a long-expected request for applications (RFA) for the Collaborative Research Centers (CRCs) for ME/CFS, announcing that the funding levels for the centers […]
Registration now open for Solve M.E. 2021 Advocacy Day!
The 5th Annual ME/CFS Advocacy Day April 20, 2021 The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. This year, […]
NIH launches database to track neurological symptoms associated with COVID-19
A new database will collect information from clinicians about COVID-19-related neurological symptoms, complications, and outcomes as well as COVID-19 effects on pre-existing neurological conditions. The COVID-19 Neuro Databank/Biobank (NeuroCOVID), which […]
Finding Resources and Creating Opportunity: 2020 ME/CFS Federal Advocacy Report
After an eight-month politically-charged rollercoaster, Congress ended 2020 by passing a $900 billion COVID-relief package and a $1.4 trillion FY21 budget simultaneously. This giant bill, totaling over 5,500 pages, was […]
You helped secure $1.15 billion for research!
This is our biggest victory, yet! Earlier this month, Solve M.E. led the charge for federally funded research into Long-COVID and myalgic encephalomyelitis (ME) — previously known as chronic fatigue […]
Honoring People with ME/CFS for Invisible Disabilities Week
As we strive to make myalgic encephalomyelitis, otherwise known as chronic fatigue syndrome, or ME/CFS, more diagnosable and treatable, we are always aware that many people suffer with this disease […]
Watch our H.R. 7057 Town Hall Meeting
Watch now: The H.R. 7057 Legislative Cafe Chat Hosted by Emily Taylor Earlier this year, Representative Jaime Raskin introduced H.R. 7057, the Understanding COVID–19 Subsets and ME/CFS Act. This landmark […]
Solve M.E. Advocacy Director Emily Taylor Answers All Your Questions About H.R. 7057 in this Q&A and Town Hall!
Hi Solve M.E. Community! In case we haven’t met before, my name is Emily Taylor, and I’m the Director of Advocacy and Community Relations at Solve M.E. Over the […]
Together, We’re Sponsoring an Historic ME/CFS Legislation!
Four Years of Advocacy has paid off! We’re Proud to have Authored and Initiated the First Ever Legislation for ME/CFS Research Funding, H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act […]
Senate Advocacy Action: $60m for ME/CFS Research
Tell Your Senator to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS! Thanks to your hard work during ME/CFS Advocacy Week, the U.S. Senate is currently circulating our request to include […]
Meet the new members of the Solve M.E. Community Advisory Council
2020-2022 Community Advisory Council Announced Solve M.E. is pleased to announce the inaugural 2020-2022 class of the Community Advisory Council (CAC). Due to overwhelming response to the call for nominations, […]
