By Emily Taylor, Director of Advocacy and Community Relations Five years ago, the 21st Century Cures Act (Cures Act) was signed into law making national headlines, launching new health initiatives, and spearheading a new chapter in government scientific investment. With robust funding, multiple government agencies rolled out programs designed to accelerate medical product development and […]
Register for Virtual Advocacy Day today! The 5th Annual ME/CFS Advocacy Day April 20, 2021 The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. This year, “ME/CFS & Long COVID Advocacy Day” welcomes all of our friends and partners from the complex, chronic illness community […]
A new database will collect information from clinicians about COVID-19-related neurological symptoms, complications, and outcomes as well as COVID-19 effects on pre-existing neurological conditions. The COVID-19 Neuro Databank/Biobank (NeuroCOVID), which was created and will be maintained by NYU Langone Health, New York City, will be a resource of clinical information as well as biospecimens from […]
After an eight-month politically-charged rollercoaster, Congress ended 2020 by passing a $900 billion COVID-relief package and a $1.4 trillion FY21 budget simultaneously. This giant bill, totaling over 5,500 pages, was signed into law on December 27th. It contained direct payments to citizens, expanded unemployment benefits, included new provisions for clinical trials, and most importantly, new […]
This is our biggest victory, yet! Earlier this month, Solve M.E. led the charge for federally funded research into Long-COVID and myalgic encephalomyelitis (ME) — previously known as chronic fatigue syndrome (CFS). We authored this letter, joined by 20 leading chronic disease and health equity stakeholders, and met with dozens of legislators to discuss these federal […]
As we strive to make myalgic encephalomyelitis, otherwise known as chronic fatigue syndrome, or ME/CFS, more diagnosable and treatable, we are always aware that many people suffer with this disease in silence — they might be invisible to others. To improve the lives of individuals suffering with ME/CFS, we are committed to shedding light and […]
Watch now: The H.R. 7057 Legislative Cafe Chat Hosted by Emily Taylor Earlier this year, Representative Jaime Raskin introduced H.R. 7057, the Understanding COVID–19 Subsets and ME/CFS Act. This landmark legislation will authorize $60 million over the next four years to expand the National Institutes of Health (NIH) research into post-viral ME/CFS and empower the […]
Hi Solve M.E. Community! In case we haven’t met before, my name is Emily Taylor, and I’m the Director of Advocacy and Community Relations at Solve M.E. Over the last few weeks, I’ve received dozens of emails from you asking questions about the historic legislation we’ve endorsed. We are thrilled with the engagement you’ve demonstrated […]
Four Years of Advocacy has paid off! We’re Proud to have Authored and Initiated the First Ever Legislation for ME/CFS Research Funding, H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act Earlier this week, longtime ME/CFS champion Representative Jaime Raskin of Maryland’s 8th Congressional district introduced landmark legislation for ME/CFS research. This landmark legislation authorizes $60 million […]
Tell Your Senator to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS! Thanks to your hard work during ME/CFS Advocacy Week, the U.S. Senate is currently circulating our request to include ME/CFS research funding in the next COVID-19 package. Our champion, Senator Ed Markey, is leading our initiative to include ME/CFS research funding in future COVID-19 […]