Solve ME/CFS Initiative Hosts IOM Briefing in D.C.

On March 25, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., on the IOM report on ME/CFS [SEID]. The briefing gathered congressional representatives, reporters, government officials and researchers while more than 300 viewed the event through a live webcast. The landmark report was reviewed and Carol Head made a strong and compelling call for more federal research funding. Read More…

Read More

Guest Blog: Dr. Lucinda Bateman on the Discussion Surrounding the IOM Report

Lucinda Bateman, MD, specializes in the diagnosis and management of unexplained chronic fatigue, ME/CFS and fibromyalgia. Having served on the IOM committee that produced the recent report, Beyond ME/CFS: Redefining an Illness, she brings an in-depth, well-informed opinion to the conversation surrounding the IOM report on ME/CFS, the new diagnostic criteria and the proposed name, Systemic Exertion Intolerance Disease (SEID). READ MORE…

Read More

IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name

IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name. The report underscores the profound impact that ME/CFS has on the millions who suffer from it worldwide (est. 17 million) and the importance of getting people diagnosed; committee calls for more research funding. READ MORE…

Read More

The Importance of a Representative Patient Population for Research

Being able to offer researchers access to ME/CFS patients with demographic and clinical characteristics that represent the full range of people affected with ME/CFS removes a significant hurdle all researchers face. With the SolveCFS BioBank™ we can make ME/CFS research more appealing and accessible. But how do we ensure our SolveCFS BioBank™ is representative of the entire patient population? READ MORE….

Read More