This is the third installment of a five-part blog series in which SMCI Scientific Director, Dr. Suzanne Vernon, analyzes the Feb. 10 IOM report section by section. In this post, Dr. Vernon considers the IOM’s second recommended diagnostic criteria: post-exertional malaise (PEM).
SMCI Comment on the Institute of Medicine Report—Part 2 of 5
This is the second of a five-part blog series in which Dr. Suzanne Vernon, SMCI Scientific Director, breaks down the landmark IOM report piece by piece. In this post, Dr. Vernon looks at the first recommended diagnostic criteria: defiant fatigue. Read More…
Solve ME/CFS Initiative Hosts IOM Briefing in D.C.
On March 25, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., on the IOM report on ME/CFS [SEID]. The briefing gathered congressional representatives, reporters, government officials and researchers while more than 300 viewed the event through a live webcast. The landmark report was reviewed and Carol Head made a strong and compelling call for more federal research funding. Read More…
SMCI Comment on the Institute of Medicine Report – Part 1 of 5
In February, the IOM released its landmark report on ME/CFS [SEID]. In this first of a five-part blog series, Dr. Suzanne D Vernon, SMCI Scientific Director breaks down the report piece by piece, beginning with making the critical distinction between a research case definition and clinical diagnostic criteria. Read More…
Guest Blog: Dr. Lucinda Bateman on the Discussion Surrounding the IOM Report
Lucinda Bateman, MD, specializes in the diagnosis and management of unexplained chronic fatigue, ME/CFS and fibromyalgia. Having served on the IOM committee that produced the recent report, Beyond ME/CFS: Redefining an Illness, she brings an in-depth, well-informed opinion to the conversation surrounding the IOM report on ME/CFS, the new diagnostic criteria and the proposed name, Systemic Exertion Intolerance Disease (SEID). READ MORE…
Pearls of Wisdom from a CFS Physician, part 3
In this third and final installment of our 3-part blog series, Pearls of Wisdom from an ME/CFS Physician, Dr Lucinda Bateman speaks to the importance of diagnosing and treating comorbid conditions. READ MORE…
IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name
IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name. The report underscores the profound impact that ME/CFS has on the millions who suffer from it worldwide (est. 17 million) and the importance of getting people diagnosed; committee calls for more research funding. READ MORE…
Public Release of the IOM ME/CFS Study February 10
The IOM’s Committee on the Diagnostic Criteria for ME/CFS will hold a public release event for its consensus report on February 10th, 2015 from 11:00 am-12:00 pm EST. Participants may attend live or view via webstream. LEARN MORE and REGISTER…
Two Important Federal Meetings Just 4 Days Apart
With only 4 days in between them, December offers two very important meetings to the ME/CFS community. On December 3-4, the CFSAC third and final meeting of 2014; on December 9-10, the Pathway to Prevention Workshop for Advancing Treatment in ME/CFS will occur. LEARN MORE…
The Importance of a Representative Patient Population for Research
Being able to offer researchers access to ME/CFS patients with demographic and clinical characteristics that represent the full range of people affected with ME/CFS removes a significant hurdle all researchers face. With the SolveCFS BioBank™ we can make ME/CFS research more appealing and accessible. But how do we ensure our SolveCFS BioBank™ is representative of the entire patient population? READ MORE….