Challenges in Ensuring Equity In the Study and Treatment of ME/CFS and Long Covid
Co-presented by Peter Rowe, MD (Professor of Pediatrics, Director, Johns Hopkins Children’s Center Chronic Fatigue Clinic) and Camille Broussard, MD, MPH (Assistant Professor in the Division of Adolescent and Young […]
RECOVER Study of Paxlovid to Treat Long Covid Begins January 2023, Has Implications for ME/CFS
The National Institutes of Health (NIH) announced that the use of Paxlovid to treat Long Covid will be the first treatment to be studied by its $1 billion RECOVER Initiative. […]
World ME Alliance calls on WHO Director General to recognize ME/CFS alongside Long Covid
On Wednesday 12th October Dr. Tedros Ghebreyesus, Director General of the World Health Organization, wrote an op-ed in the Guardian. In it, he lays clear the devastation that Long Covid […]
New Ramsay Grant Researchers Push the Envelope with Innovative ME/CFS & Long Covid studies
We’re excited to share the newest class of Ramsay Researchers! Since its launch, our Ramsay Research Grant Program has been successful in attracting new scientists to the fields of ME/CFS […]
Breaking News: FDA clears Ampligen to start a clinical trial in Long Covid
A decade after the U.S. Food and Drug Administration (FDA) did not approve Ampligen (rintatolimod) for the treatment of ME/CFS, this antiviral and immuno-modulator drug is getting a rare second chance. […]
New Diagnostic Codes for ME/CFS in the U.S. ICD-10-CM
Starting this month, doctors will be able to add a unique code for ME/CFS into your medical record — G93.32. Going forward, Americans diagnosed with ME/CFS, including any new cases following […]
Long Covid & Fatiguing Illness Recovery Program
Research Update Featuring: Avindra Nath, MD (Clinical Director of National Institute of Neurological Disorders and Stroke – NIH; Chief of the Section of Infections of the Nervous System – NIH; […]
Study Reveals First Genetic Links in ME/CFS, Could Accelerate Development of New Treatments
Oxford-based biotech company PrecisionLife announced that their combinatorial analysis of genetic data links 14 genes to ME/CFS and identifies many patient subgroups. According to a press release, “This is the […]
$15 Million Long Covid Research Venture Has Roots in Solve M.E. Ramsay Awards
Last week, the PolyBio Research Foundation announced the launch of their Long Covid Research Initiative (LCRI), to search for drivers of this condition and ultimately find treatments to help the […]
COVID-19 as a Trigger for ME/CFS: Severity Biomarkers and Underlying Mechanisms
Since the beginning of the pandemic, SARS-CoV-2 has been suspected of causing chronic fatigue syndrome (ME/CFS). A well-controlled cohort study conducted by a group of researchers from Charité – Universitätsmedizin […]
Labor Lost: The Economic Impact of Post-Infection Disease
Each year in observance of Labor Day, we honor workers and their achievements. But the holiday is also an occasion to consider all of those who are robbed of the […]
Pediatric Post-COVID Conditions
Long COVID & Fatiguing Illness Recovery Program Presenters include: Peter C. Rowe, MD Director of the Chronic Fatigue Center at Johns Hopkins Children’s Center Professor of Pediatrics at Johns Hopkins […]