Hope on the Hill – ME/CFS in Washington DC: Our perspective on the federal government and why we continue our work.
On Tuesday, December 3, the IOM announced the provisional Clinical Case Definition Committee slate. The Association has reviewed the full slate of committee members and is optimistic that this committee can be effective in fulfilling its important mandate.
For ME/CFS sufferers, “coming out” to family and friends about their illness can be a tremendous challenge, especially at the holidays, but it is an important piece of the puzzle. We are proud and thankful to work with individuals who are willing to share their story as widely as possible, like Anna Zapp…
Celebrating the winter holidays is emotionally and physically draining for everyone, but those with ME/CFS and their caregivers can have an especially difficult time. We offer some suggestions to help all those affected by ME/CFS celebrate the holidays within the boundaries that the illness can create.
After much controversy, HHS, via the Chronic Fatigue Syndrome Advisory Committee listserv, has released an FAQ about the contract with the IOM concerning clinical diagnostic criteria development…
The next CFSAC meeting will be held via webinar on Tuesday, December 10, 2013 and Wednesday, December 11, 2013 from 12:00 p.m. until 5:00 p.m.
The CFIDS Association of America is thrilled to announce the appointment of its new President and CEO, Ms. Carol Head.
On October 16 from 1:30 PM – 3:00 PM EST, FDA will hold a teleconference that is open to the public. Your voice is important in the dialogue.
Clearing the Air – We must galvanize around ME/CFS in order to conquer it.
We feel that the Canadian Clinical Consensus can be optimized as a clinical case definition by applying a standardized methodology of execution, through validation of criteria, and a nationwide dissemination to health professionals.