Advocacy at Solve M.E.

Solve M.E. is the proud host and organizer of the annual Advocacy Month. Founded in 2017, this nationwide advocacy effort connects people with Long Covid and other chronic illnesses; scientists; clinicians and caregivers to share their unique stories with Congress. These advocacy events contains actions for every energy level and ability to join, from a social media post, to meeting with congressional leaders face-to-face in Washington D.C. Our goals are to educate, empower, and deliver our message: “#StopTheLongHaul now!”

Through its extensive advocacy efforts, Solve has already helped to secure $1.15 billion in congressional funding for NIH research into Long Covid. Solve M.E. also plays a significant advisory role in government and has had several other key legislative successes, helping to introduce the following legislation:
 
  • CARE for Long Covid Act
  • TREAT Long Covid Act
  • Covid-19 LongHaulers Act

Please sign up to work with us on behalf of the Long Covid community on Capitol Hill.

"*" indicates required fields

Advocacy Month 2022 Victories

“We gained three new co-sponsors for the CARE for Long COVID Act, thanks to the passionate participation during Advocacy Month. This brings us another step closer to the passage of legislation that will fund comprehensive access to resources and education for all post-viral diseases, including Long Covid and ME/CFS.”

Emily Taylor, Solve M.E. Vice President of Advocacy and Engagement

Long Haul Voices: Living With Long Covid & ME/CFS

Long Haul Voices is a mini-series created in partnership with Unfixed Media Productions that amplifies the experiences of individuals with Long Covid and ME/CFS, the experts devoted to improving their care, and the challenges surrounding these largely invisible, poorly-understood diseases that affect a rapidly growing population. Watch the complete series below.

LONG HAUL PATIENTS

Chronic diseases can profoundly impact people’s lives and identities. Individuals with ME/CFS and Long Covid answer key questions: How do you create a “new normal” when goals, dreams, relationships and careers are forced to change? What changes about life and relationships with chronic disease? How does your identity and your disease interact?

LONG HAUL RESEARCH & CARE

There are important relationships among patients, their medical teams, and the researchers trying to understand their disease. Sometimes these relationships are built on respect and care, and sometimes misunderstanding and dismissal. How these partnerships play out has an enormous impact on patient outcomes.

LONG HAUL ADVOCATES

In the chronic disease community, there are two types of advocacy: self advocacy and systems advocacy. Prominent community advocates help us understand how patients, scientists, clinicians, and caregivers can become empowered to become advocates who raise their voices in the halls of power.

As more individuals learn they have Long Covid and others struggle with symptoms even without a diagnosis, we know how important it is to share your stories and increase awareness of this devastating disease. Our Humans of M.E. Story Archive is a repository of unique autobiographical content written by members of our post-infection disease community. 

Advocacy Action Tools

Our Remote Action Kit makes it easy to learn about the most current advocacy action items, connect with your elected officials, and share your story with your members of Congress.