While COVID-19 has changed where we work, it has not stopped how hard we work on behalf of the ME/CFS community. Following several months of development, user testing and partnership with the community, we are fast approaching the launch of the You + M.E. Registry!
We’ve received several inquiries and thoughts regarding approaches to track both the impact of COVID-19 on people with ME/CFS and the development of ME/CFS-like symptoms following COVID-19 exposure. We believe the You + M.E. Registry is well-suited to be leveraged in this effort. Here’s what we’re planning:
1. We’ve integrated a COVID-19 questionnaire in the You + M.E. survey dashboard so that we can track the impact of COVID-19 on the health of people with pre-existing ME/CFS
2. We’ve initiated partnerships with established COVID-19 registries and apps to include questions that ask participants whether they have developed post-viral ME/CFS-like symptoms. If they answer yes, they will be referred to You + M.E. so they can provide more comprehensive information.
We believe the combination of these two actions will enhance our collective understanding of the short and long-term impacts of COVID-19.
You can learn more at You + M.E. Registry and stay tuned for our official launch later this month!