Advocacy Cafe Chat
During Advocacy Month 2022, we premiered a new series spotlighting the voices of several standout members of our community as they inspired us with their stories, advocated for change, and […]
12 events found.
Events
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Caring for The Caregiver
OnlineIn this webinar, Stephanie Harrison, founder of The New Happy, joins Solve M.E. to help you cultivate greater well-being. She will share her unique perspective as a caregiver fused with her expertise in applied positive psychology. Her interdisciplinary approach to studying happiness is based on hundreds of academic studies and original research that informs The New Happy philosophy that true, […]
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Solve M.E. and BIO co-host “Long Covid: What Will It Take To Accelerate Therapeutic Progress?”
Solve M.E. and The Biotechnology Innovation Organization (BIO) will co-host a three-hour virtual event “Long Covid: What Will It Take to Accelerate Therapeutic Progress?” on Tuesday, February 21 from 10:00 AM - 1:00 PM PT (1:00 - 4:00 PM ET). Our goal is to convene stakeholders to advance research and development to diagnose and treat […]
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CDC Update: Recent Strides in Long Covid
OnlineIn this webinar, Solve M.E. President Oved Amitay welcomes Dr. Elizabeth Unger, chief of Chronic Viral Diseases Branch at Centers for Disease Control and Prevention, and her CDC colleagues to share updates and progress on The School-Based Active Surveillance Project (presented by Anindita Nanda Issa, MD), the Long Covid Fatiguing Illness Recovery Program (ECHO) (presented by Jennifer […]
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How to Make an Impact at the FDA’s Drug Development Meeting for Long Covid
OnlineOn April 25th, 2023, FDA is hosting a virtual public meeting on Patient-Focused Drug Development (PFDD) for Long Covid. This meeting will provide FDA the opportunity to obtain initial patient […]
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March Advocacy Cafe Chat
OnlineDuring Advocacy Month 2022, we premiered a new series spotlighting the voices of several standout members of our community as they inspired us with their stories, advocated for change, and […]
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Solve M.E. Advocacy Week Training Sessions
OnlineNo advocacy experience? Join our training sessions! We’re hosting three virtual training sessions — all will cover the same material, to allow multiple opportunities to register. Join our virtual […]
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Advocacy Week 2023
Advocacy Week 2023 will take place virtually and in person throughout the week of April 17th to April 22nd, 2023! Advocacy Week is a nationwide advocacy effort to connect people […]
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EmPOWER M.E. 2023: Navigating the World with Energy Limiting Disabilities
OnlineHosting EmPOWER M.E. during Advocacy Week each year is one of our favorite ways to connect with our community after a long week of congressional meetings. This year, our Lived Experience Taskforce (LET) partners helped us choose our topic: Navigating the World with Energy Limiting Disabilities. This special event on April 21 at 10 AM […]
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FDA Patient-Focused Drug Development Public Meeting for Long Covid
OnlineThe US Food and Drug Administration (FDA) is hosting a virtual public meeting on Patient-Focused Drug Development for Long Covid on Tuesday, April 25th, 2023, from 10 a.m. to 4:00 p.m. ET. It will be conducted with live translation in both English and Spanish. Patient-Focused Drug Development meetings are important and infrequent opportunities for patients to provide […]
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Effects of Long Covid and ME/CFS on Sleep
OnlineMany individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection, about 60% of people self-report lingering sleep difficulties, even if they had a mild course of acute COVID-19. Unrefreshing […]
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NIH ME/CFS Telebriefing
OnlineNIH’s next ME/CFS Advocacy Call will be held on May 1, 2023 from 12:00 – 1:00 pm ET. The webinar will include updates from NIH on ME/CFS-related research activities and a scientific presentation by Avik Roy, PhD, and Gunnar Gottschalk, PhD, investigators at Simmaron Research and the University of Wisconsin-Milwaukee. Please register in advance! During the webinar, […]