Advocacy Week 2023 will take place virtually and in person throughout the week of April 17th to April 22nd, 2023! Advocacy Week is a nationwide advocacy effort to connect people with ME/CFS, Long COVID, and associated conditions; scientists; clinicians, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS, […]
Hosting EmPOWER M.E. during Advocacy Week each year is one of our favorite ways to connect with our community after a long week of congressional meetings. This year, our Lived Experience Taskforce (LET) partners helped us choose our topic: Navigating the World with Energy Limiting Disabilities. This special event on April 21 at 10 AM […]
The US Food and Drug Administration (FDA) is hosting a virtual public meeting on Patient-Focused Drug Development for Long Covid on Tuesday, April 25th, 2023, from 10 a.m. to 4:00 p.m. ET. It will be conducted with live translation in both English and Spanish. Patient-Focused Drug Development meetings are important and infrequent opportunities for patients to provide […]
Many individuals who have had COVID-19 experience long-term symptoms that have a major impact on their lives. One of the most common symptoms is sleep disturbance. After more than six months from the time of infection, about 60% of people self-report lingering sleep difficulties, even if they had a mild course of acute COVID-19. Unrefreshing […]
NIH’s next ME/CFS Advocacy Call will be held on May 1, 2023 from 12:00 – 1:00 pm ET. The webinar will include updates from NIH on ME/CFS-related research activities and a scientific presentation by Avik Roy, PhD, and Gunnar Gottschalk, PhD, investigators at Simmaron Research and the University of Wisconsin-Milwaukee. Please register in advance! During the webinar, […]
2nd International Meeting of the CFC - Charité Fatigue Center ME/CFS Conference 2023 - Understand, Diagnose, Treat Date: Thursday, May 11, 2023, 9 a.m. to 6 p.m. and Friday, May 12, 2023, 9 a.m. to 2 p.m No participation fees. Register here.
Advocacy Cafe is a community-favorite event that brings you more stories, inspiration, and conversations to connect and empower our advocates. Our next session will be on Friday, May 12 at 12 pm PT/ 3 pm ET to coincide with World ME Day. Solve M.E.’s Emily Taylor will bring you a recap of this month’s Advocacy […]
The Institute for Neuro Immune Medicine will host the conference in the Alan B. Levan Innovation Center on the Nova Southeastern University campus in Davie, FL May 19th 12:30 – 5pm The goal of the conference is to highlight new information, present ongoing research and new services being offered in their clinic. Among the topics to […]
Solve is hosting the Hope Biosciences Research Foundation (HBRF) for a webinar on Thursday, May 25 at 10AM PT. HBRF has conducted three FDA-authorized studies in mesenchymal cell therapy for COVID-19 prevention and treatment, and two studies in Long Covid. Join Solve President Oved Amitay and HBRF founder Donna Chang for a comprehensive discussion of […]
The National Academies of Sciences, Engineering, and Medicine (NASEM) is hosting a two-day workshop bringing together clinicians, researchers, and other stakeholders to create a scientific paradigm shift by examining common biological and clinical factors in chronic illnesses associated with prior infectious disease. The public workshop, “Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: A […]
Advocacy Cafe is a community-favorite event that brings you more stories, inspiration, and conversations to connect and empower our advocates. This month's session will take place 7/21 at 12 pm PT/ 3 pm ET and feature a conversation with Solve M.E.’s Emily Taylor about our appropriations process. Please note — no registration is required. Join […]
Solve M.E. is excited to host STAT Health CEO Daniel Lee for a conversation about their innovative in-ear wearable device. We'll discuss how the STAT in-ear wearable measures blood flow to the head, tracks changes in heart rate and blood pressure trend when users stand up. Designed to empower individuals with ME/CFS, Long Covid, and […]
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